Wow …. It’s interesting that you said even if she’s not affected because she is fine from the neck up !!! She can’t use her hands and arms and trouble with her legs . She can’t dress herself and obviously can’t do her hair or makeup and can’t cook for her family which she loved to do . I will definitely take your advice . Excited I got her accepted to be examined at the Mayo Clinic . Fingers Crossed . Thank You For the information!!!