When to accept permanent long covid?

I totally understand. Zero compassion. I'd like to think they're over worked & super frustrated, but empathy is a critical part of healthcare.

I’m sorry for all the suffering going on with long covid, it’s just frightening to hear how many people are still so very sick from this pandemic virus. Sadly, we had to learn very slowly as to what we are dealing with, the stories are vast and symptom vary but many are similar. I had a very bad opinion about the doctors who didn’t know what to do or simply tried to make me feel that it’s all in my head and I should seek help from a psychiatrist. I too have long covid and it primarily affected my heart, also had many tests to no avail, I live with it now and sometimes it’s better but there are relapses. I also had to learn how to survive with cancer at the same time so it’s a lot to deal with. I can’t prevent the cancer from recurring, no one can no matter how hard they try but I can control covid by simply wearing masks in public places, I don’t want another covid infection because it leaves you with so many horrible symptoms, what worries me is that people have long covid and are still suffering after covid but they still go outside without a mask leading to multiple infections…most complaints are that masks feel uncomfortable and annoying, I agree with that but the alternative is getting infected again and more long covid to deal with, which one would you prefer??

I’m sorry for all the suffering going on with long covid, it’s just frightening to hear how many people are still so very sick from this pandemic virus. Sadly, we had to learn very slowly as to what we are dealing with, the stories are vast and symptom vary but many are similar. I had a very bad opinion about the doctors who didn’t know what to do or simply tried to make me feel that it’s all in my head and I should seek help from a psychiatrist. I too have long covid and it primarily affected my heart, also had many tests to no avail, I live with it now and sometimes it’s better but there are relapses. I also had to learn how to survive with cancer at the same time so it’s a lot to deal with. I can’t prevent the cancer from recurring, no one can no matter how hard they try but I can control covid by simply wearing masks in public places, I don’t want another covid infection because it leaves you with so many horrible symptoms, what worries me is that people have long covid and are still suffering after covid but they still go outside without a mask leading to multiple infections…most complaints are that masks feel uncomfortable and annoying, I agree with that but the alternative is getting infected again and more long covid to deal with, which one would you prefer??

I am looking for some answer on how to get over this and any type of medication that I can take.please get back to me.Thank you.

You might want to discuss taking modafinil (Provigil) with your medical provider. My daughter is on a dose lower than the smallest tablet made, so be willing to experiment with a small dosage if a more standard dose isn't tolerated. I found I had too many uncomfortable side effects of jitteriness, hyper alertness, etc. , so it didn't help me even at a very low dose. You might want to start with a dose as low as 25 mg/day, but by all means do this under the supervision of your medical provider.

You might want to discuss taking modafinil (Provigil) with your medical provider. My daughter is on a dose lower than the smallest tablet made, so be willing to experiment with a small dosage if a more standard dose isn't tolerated. I found I had too many uncomfortable side effects of jitteriness, hyper alertness, etc. , so it didn't help me even at a very low dose. You might want to start with a dose as low as 25 mg/day, but by all means do this under the supervision of your medical provider.

To gregorb —

I’ve had LC since February 2024. I also wonder how long it will continue, so I take note of published estimates. Articles reporting on different samples of longhaulers have given correspondingly different accounts of what percentage of people were over their LC by 3 months, 1 year, 2 years, etc.

How long it takes for a person to get over LC depends in part on their particular physiology, underlying pre-Covid health status,
Covid vaccination status, the set of LC symptoms they have, and which Covid variant they were infected with.

So, I remain uncertain about when I’ll be over my LC.

I got my 2nd post-infection Covid booster a week ago. My LC response has been neutral, so far. I get these boosters to prevent a new Covid infection on top of my current case of LC.

— friedrich

My apologies if this isn't the right thread to post this on. Let me know if it is better suited somewhere else.

After so many tests that come back mostly normal, I am getting a little frustrated. All said and done, most of the docs I've seen have chalked the fatigue, brain fog and tremors up to LC/Post-COVID stuff. It does seem like most docs, around here at least, don't know exactly what to do and aim to just treat/manage the symptoms as best they can since a definitive cause can't be found. My Neuro even prescribed me Armodafinil for the brain fog and it worked great for me but the insomnia "rebound" was a real bugger so my using those may be limited. Having one decent day of mostly clear though was nice but not sure it's worth all that.

My big question at this point is this, has anyone tried or heard about results with the Ultimate Spike Detox supplements? It's probably just "snake oil" but at this point I am at least open to considering it.

Unfortunately, at this point there isn't much that can be done for Long-COVID. And with that , for the hundreds of thousands or millions who suffer with it, it is a serious problem. Don't give up hope. Stay within the limits of the energy you have. I'm hoping and wishing for each and every one of us that there will be a breakthrough, and soon. Right now, it's not here yet. And I hope each and every one can find a compassionate medical provider.