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Empty Sella Syndrome
Hello, Newly diagnosed with this syndrome. Basically pitatuary gland is pinched and/or not able to be found on MRI and now affecting my vision and my ACTH and prolactin levels are wacky. MRI found a csyst or possible CSF leakage. Anyone experience this? I am just beginnin this journey and looking for any information at all.
Thank you,
Cara in ND
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Hi,
After a follow up appointment I'm left wondering why they bothered. They came across as totally uninterested in taking this further. No information or help. I keep getting all these diagnosis and left to figure it out myself. I wonder if they really know what they are doing, it seems to be a trend to make a diagnosis and leave it there as they think they have done their job. Or could it be beyond their capabilitie to try and help. I'm surprised they didn't play the psychological card when they have no idea. Anyway the alternative is to figure it out myself and manage the situation as best I can. Likely head in the sand ignoring everything and plough on with life while I can, for as long as I can.
Cheers
Does it cause low cortisol. On HC. Doing more tests. Scared since it’s rare. No headaches. Sailboat feeling. Shaking.
Low AM cortisol. On hydrocortisone. For 8 years had internal shaking. No one knew a thing. 4 MRI’s last showed empty sella then I find out my previous three MRIs showed it in my neural Nuero. He said my symptoms do not correlate with the MRI. I don’t know who to believe. I’m on hydrocortisone. I was getting some energy off that but it’s not doing what shit right now I’m back to the internal shaking weakness. I’ve been to four endocrinologist and they’re all the same worthless. I don’t know if I can even trust our narrow in this area. I am postmenopausal so I am on some HRT.