Empty Sella Syndrome

Posted by caras @caras, Aug 29, 2012

Hello, Newly diagnosed with this syndrome. Basically pitatuary gland is pinched and/or not able to be found on MRI and now affecting my vision and my ACTH and prolactin levels are wacky. MRI found a csyst or possible CSF leakage. Anyone experience this? I am just beginnin this journey and looking for any information at all.
Thank you,
Cara in ND

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cheyne | @cheyne | May 26 3:16pm

Hi,
After a follow up appointment I'm left wondering why they bothered. They came across as totally uninterested in taking this further. No information or help. I keep getting all these diagnosis and left to figure it out myself. I wonder if they really know what they are doing, it seems to be a trend to make a diagnosis and leave it there as they think they have done their job. Or could it be beyond their capabilitie to try and help. I'm surprised they didn't play the psychological card when they have no idea. Anyway the alternative is to figure it out myself and manage the situation as best I can. Likely head in the sand ignoring everything and plough on with life while I can, for as long as I can.
Cheers