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Just wondering...sometimes after the call, it doesn't work out?
My husband is waiting for a liver. I've read and heard that sometimes you get the call only to find out after you get to the hospital that it won't work. Does this happen often? I don't remember being told this in any of our appointments. I want my husband to be prepared in case it happens to him.
Blessings,
JoDee
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Be patient trust me you only want to get this done once the doctors know what they are doing you want the best one possible, I waited a few months I was near death but after you get it done a huge anxiety burden will be gone hopefully you get it soon
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4 ReactionsJodee, your transplant team should have provided a phone number for potential donors to call. You could post it on social media.
I got my first call for a transplant and had a bag packed only to be told I was the #2. Got the second call 6 months later and all went well. It WILL happen 🤞
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3 ReactionsThe same thing happened to me. 2 weeks later I had my transplant and the liver must have been a great one because I am 38 years post transplant on June 9th. Wish you a wonderful transplant journey. There is life after transplant.
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5 Reactions@jaimedavis93 I am sitting here with fingers crossed the call comes in soon for you. The saying "all in due time" seems to fit here, doesn't it?!
My husband is a kidney transplant recipient. He was offered a kidney but had to decline it because he was on the last 3 days of a 14 day antibiotic regiment for a diverticulitis infection. So, someone else took his place. The nurses assured him he would be getting "the call" soon. He did, 2 weeks later! He and another patient received deceased donor kidneys from the same donor. That was 1 October 2016.
Gentle hugs being sent for getting that call soon, and patience!
Ginger
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4 ReactionsYes, this happens. It just happened to me two weeks ago. I got to the hospital (3 hours away), and was told the liver wasn’t functioning correctly. I heard a woman in a support group who said it happened to her 4 times.
It’s difficult, but I tell myself it was great that they didn’t transplant me and then it failed. Our time will come, hang in there, we got this!💪🏻🙏🏻
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2 ReactionsIm on list for liver transplant. We can’t have transplant if on antibiotics?
Don't think so but I am not a doctor. If you have some other infection they probably want it to clear first but may give you antibiotics as part of the transplant ? A official Mayo person or doctor would know for sure. Best of luck.
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1 ReactionIt does happen. When they get the organ they sometimes find that it isn’t going to work. You want to have a good organ to transplant. Stay strong. It also happened to me. When I did have my transplant it went really well. On June 9th I will be 38 years post transplant.
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2 Reactions@carecare The transplant team wants you in top form for the surgery! That's why they want to see any pending dental work done, any diagnostic testing done [colonoscopy, mammogram, etc] and have the recipient healthy. It's a matter of rejection risk.
Ginger
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2 ReactionsI’m scared.😢