What are your 3 worst symptoms?

Posted by gregorb @gregorb, May 14 7:23pm

Trying to determine the 3 worst symptoms we are dealing with as a group.

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@suefish

They all suck, but my three worst are brain fog, dry mouth, and weird dreams EVERY night.

Sfishalow

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Yes they do. Even worse when other ones rotate in and out of the list. Unwanted variety. Best wishes and good luck.

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@gregorb

Yes they do. Even worse when other ones rotate in and out of the list. Unwanted variety. Best wishes and good luck.

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Thanks for the good wishes. Much appreciated.

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@suefish

They all suck, but my three worst are brain fog, dry mouth, and weird dreams EVERY night.

Sfishalow

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Many thanks.

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Chronic fatigue, depression and stomach problems.

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@c1john

Chronic fatigue, depression and stomach problems.

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C1john
Not the good type of trifecta. So sorry to hear this. Hope you can get some relief soon. Remember our group is here for your support. Best wishes and good luck to you.

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For me it is fatigue, headache and post exertion malaise. But at my worst I had 19 different symptoms, with fatigue, brain fog and photophobia being the worse.

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@carlosmayo

For me it is fatigue, headache and post exertion malaise. But at my worst I had 19 different symptoms, with fatigue, brain fog and photophobia being the worse.

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So sorry to hear that. Wow! 19 different symptoms. While probably not that unusual with rotation in and out, I've never heard of anyone having that many. That's rough. Hard enough dealing with my 5. Thanks for the reply. Best wishes and best of luck.

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@mohill

I'm so sorry you are suffering. I also set my clock to eat & drink b/c I have zero appetite but can't allow even more weight loss. I'm 5'10" & went down to 102 lbs. Now I'm stable at 115 w/ a goal of 130-140 (my former baseline). Do you also have problems w/ food aversion? Some foods I used to enjoy repulse me now.

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Relieved not just me. I enjoyed good food growing up our own too. But no matter what delicious recipes my husband enjoys cooking whether veggie, chicken, fish or meat, at the last minute I find it difficult to eatI can go a whole day only having had toast for breakfast and have to be reminded to eat something. v thirsty Gastroscopy showed erosion post Covid of lining put on Omeprazole don’t notice a difference. It’s dropped my energy levels and do less have to sleep in the afternoons as well really odd

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Limited smell, lack of any taste,

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@fiona57

Relieved not just me. I enjoyed good food growing up our own too. But no matter what delicious recipes my husband enjoys cooking whether veggie, chicken, fish or meat, at the last minute I find it difficult to eatI can go a whole day only having had toast for breakfast and have to be reminded to eat something. v thirsty Gastroscopy showed erosion post Covid of lining put on Omeprazole don’t notice a difference. It’s dropped my energy levels and do less have to sleep in the afternoons as well really odd

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Mohill
So sorry you're suffering and that you've lost the enjoyment of one of the greatest pleasures of life. Eating. Best wishes and good luck.

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