My mental state, full body neuropathy, pain in my tailbone, hips and legs. Mental state I have severe brain fog, blackouts, confusion, forgetfulness, lack of sense of time, severe forgetfulness. Full body neuropathy. Numbness through my whole body, tingling spotty pain that moves around which I call fireballs and losing fulfilling in my legs.
Sunfish
Thanks for posting. So sorry you're going through this. My common symptoms just keep rotating in and out. Sure you're as exhausted as I am. Best wishes and good luck to us all.
3 worst symptoms. At night I am often awakened with racing heart and shortness of breath is the first. Fatigue is throughout most of the day. Brain fog so I have to wait hours, once I awaken, to be able to drive safely. If anyone has found something that will reduce the night time racing heart and shortness of breath, I would appreciate that information. I am miserable. I am using anti-histamines, but they are not anywhere near enough.
[Brain fog causes me to take much longer to read or compose. I just spent at least an hour* composing my reply here and at the last moment clicked the wrong button and erased it all. So here it goes again… sigh.]
LC 4 1/2 years
I have struggled with cardio-pulmonary issues from the start. Heart racing/palpitations, chest pain/pressure, with shortness of breath as a companion. Heart rate spikes and dips from 45-200 with little to no exertion. The accompanying shortness of breath felt like I was breathing through cheese cloth. A tilt table test resulted in Postural Orthostatic Hypotension (POHS) or Postural Orthostatic Tachycardia (POTS). Basically, a sudden decrease in blood pressure that causes a rapid increase of heart rate in response, after a change of position. Lying to sitting or standing. My blood pressure was averaging on the high side. To counter this my LC Clinic doc tried me on a lower dose of Metoprolol hoping it would lessen the heart and chest symptoms while not lowering BP to dangerous levels. It worked amazingly well for me. Average heart rate at 85-105bpm was decreased to 65-75bpm. Only your doctor will be able to assess if this is a treatment for you. I would discuss it at your next follow-up. Can’t hurt to talk about it.
Brain fog has been severe from the beginning and continues to this day. Since sitting and not moving my head much is my favored position, I don’t usually have trouble driving. However, if my trip is interrupted, and my focus deferred, by traffic delays or slowdowns, I can forget where I am or where I am going. For that I NEVER drive anywhere without my trusty GPS to keep me on track at the correct speed on the way to my destination. Even if I’m driving a familiar route.
Blessings on you! I hope this has been helpful.
[*Another hour to re-write. No wonder all my days are so unproductive… sigh]
[Brain fog causes me to take much longer to read or compose. I just spent at least an hour* composing my reply here and at the last moment clicked the wrong button and erased it all. So here it goes again… sigh.]
LC 4 1/2 years
I have struggled with cardio-pulmonary issues from the start. Heart racing/palpitations, chest pain/pressure, with shortness of breath as a companion. Heart rate spikes and dips from 45-200 with little to no exertion. The accompanying shortness of breath felt like I was breathing through cheese cloth. A tilt table test resulted in Postural Orthostatic Hypotension (POHS) or Postural Orthostatic Tachycardia (POTS). Basically, a sudden decrease in blood pressure that causes a rapid increase of heart rate in response, after a change of position. Lying to sitting or standing. My blood pressure was averaging on the high side. To counter this my LC Clinic doc tried me on a lower dose of Metoprolol hoping it would lessen the heart and chest symptoms while not lowering BP to dangerous levels. It worked amazingly well for me. Average heart rate at 85-105bpm was decreased to 65-75bpm. Only your doctor will be able to assess if this is a treatment for you. I would discuss it at your next follow-up. Can’t hurt to talk about it.
Brain fog has been severe from the beginning and continues to this day. Since sitting and not moving my head much is my favored position, I don’t usually have trouble driving. However, if my trip is interrupted, and my focus deferred, by traffic delays or slowdowns, I can forget where I am or where I am going. For that I NEVER drive anywhere without my trusty GPS to keep me on track at the correct speed on the way to my destination. Even if I’m driving a familiar route.
Blessings on you! I hope this has been helpful.
[*Another hour to re-write. No wonder all my days are so unproductive… sigh]
jrg, so sorry you have had to try and tolerate this for so long. Thanks for sharing all the information. I will keep the Metoprolol in mind. Has your doctor tested you for histamine intolerance or Mast Cell activation syndrome?
One of my practitioners has LC too. She uses a nicotine patch. I think she says it helps with the racing heart. It is experimental. Some things to think about.
Sunfish
Thanks for posting. So sorry you're going through this. My common symptoms just keep rotating in and out. Sure you're as exhausted as I am. Best wishes and good luck to us all.
How about memory lost ?
Short term my son came to visit in November from NY cant recall at all his visit
what happen 2-3 weeks ago feels like 2-3 years
7-10 years mostly all gone
Ps it took me 25 minutes to write this which should of taken 3 minutes
the good news it is getting better an for what it,s worth cant remember 4 years of F--- Long Covid
How about memory lost ?
Short term my son came to visit in November from NY cant recall at all his visit
what happen 2-3 weeks ago feels like 2-3 years
7-10 years mostly all gone
Ps it took me 25 minutes to write this which should of taken 3 minutes
the good news it is getting better an for what it,s worth cant remember 4 years of F--- Long Covid
My mental state, full body neuropathy, pain in my tailbone, hips and legs. Mental state I have severe brain fog, blackouts, confusion, forgetfulness, lack of sense of time, severe forgetfulness. Full body neuropathy. Numbness through my whole body, tingling spotty pain that moves around which I call fireballs and losing fulfilling in my legs.
[Brain fog causes me to take much longer to read or compose. I just spent at least an hour* composing my reply here and at the last moment clicked the wrong button and erased it all. So here it goes again… sigh.]
LC 4 1/2 years
I have struggled with cardio-pulmonary issues from the start. Heart racing/palpitations, chest pain/pressure, with shortness of breath as a companion. Heart rate spikes and dips from 45-200 with little to no exertion. The accompanying shortness of breath felt like I was breathing through cheese cloth. A tilt table test resulted in Postural Orthostatic Hypotension (POHS) or Postural Orthostatic Tachycardia (POTS). Basically, a sudden decrease in blood pressure that causes a rapid increase of heart rate in response, after a change of position. Lying to sitting or standing. My blood pressure was averaging on the high side. To counter this my LC Clinic doc tried me on a lower dose of Metoprolol hoping it would lessen the heart and chest symptoms while not lowering BP to dangerous levels. It worked amazingly well for me. Average heart rate at 85-105bpm was decreased to 65-75bpm. Only your doctor will be able to assess if this is a treatment for you. I would discuss it at your next follow-up. Can’t hurt to talk about it.
Brain fog has been severe from the beginning and continues to this day. Since sitting and not moving my head much is my favored position, I don’t usually have trouble driving. However, if my trip is interrupted, and my focus deferred, by traffic delays or slowdowns, I can forget where I am or where I am going. For that I NEVER drive anywhere without my trusty GPS to keep me on track at the correct speed on the way to my destination. Even if I’m driving a familiar route.
Blessings on you! I hope this has been helpful.
[*Another hour to re-write. No wonder all my days are so unproductive… sigh]
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My mental state, full body neuropathy, pain in my tailbone, hips and legs. Mental state I have severe brain fog, blackouts, confusion, forgetfulness, lack of sense of time, severe forgetfulness. Full body neuropathy. Numbness through my whole body, tingling spotty pain that moves around which I call fireballs and losing fulfilling in my legs.
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5 ReactionsExceedingly dry mouth, especially at night; major brain fog, especially with people I don’t know well; cough
Sue Fishalow
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4 ReactionsSunfish
Thanks for posting. So sorry you're going through this. My common symptoms just keep rotating in and out. Sure you're as exhausted as I am. Best wishes and good luck to us all.
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1 Reaction@sweetwater9
[Brain fog causes me to take much longer to read or compose. I just spent at least an hour* composing my reply here and at the last moment clicked the wrong button and erased it all. So here it goes again… sigh.]
LC 4 1/2 years
I have struggled with cardio-pulmonary issues from the start. Heart racing/palpitations, chest pain/pressure, with shortness of breath as a companion. Heart rate spikes and dips from 45-200 with little to no exertion. The accompanying shortness of breath felt like I was breathing through cheese cloth. A tilt table test resulted in Postural Orthostatic Hypotension (POHS) or Postural Orthostatic Tachycardia (POTS). Basically, a sudden decrease in blood pressure that causes a rapid increase of heart rate in response, after a change of position. Lying to sitting or standing. My blood pressure was averaging on the high side. To counter this my LC Clinic doc tried me on a lower dose of Metoprolol hoping it would lessen the heart and chest symptoms while not lowering BP to dangerous levels. It worked amazingly well for me. Average heart rate at 85-105bpm was decreased to 65-75bpm. Only your doctor will be able to assess if this is a treatment for you. I would discuss it at your next follow-up. Can’t hurt to talk about it.
Brain fog has been severe from the beginning and continues to this day. Since sitting and not moving my head much is my favored position, I don’t usually have trouble driving. However, if my trip is interrupted, and my focus deferred, by traffic delays or slowdowns, I can forget where I am or where I am going. For that I NEVER drive anywhere without my trusty GPS to keep me on track at the correct speed on the way to my destination. Even if I’m driving a familiar route.
Blessings on you! I hope this has been helpful.
[*Another hour to re-write. No wonder all my days are so unproductive… sigh]
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3 Reactionsjrg, so sorry you have had to try and tolerate this for so long. Thanks for sharing all the information. I will keep the Metoprolol in mind. Has your doctor tested you for histamine intolerance or Mast Cell activation syndrome?
One of my practitioners has LC too. She uses a nicotine patch. I think she says it helps with the racing heart. It is experimental. Some things to think about.
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2 ReactionsHow about memory lost ?
Short term my son came to visit in November from NY cant recall at all his visit
what happen 2-3 weeks ago feels like 2-3 years
7-10 years mostly all gone
Ps it took me 25 minutes to write this which should of taken 3 minutes
the good news it is getting better an for what it,s worth cant remember 4 years of F--- Long Covid
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2 ReactionsFatigue
Cognitive issues/changes
Vision changes
I get it.
Sue Fishalow
Amen. Hate it! No change in sight.
Sue
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2 ReactionsSue
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