1. < Heart & Blood Health

Anyone dealing with symptoms of portal Hypertension if so please share

Posted by jlf2 @jlf2, Nov 10, 2023

I was told I have Portal Hypertension and I would like to know if anyone with Portal Hypertension would like to share what symptoms they are experiencing with me, I hurt all the time my stomach , my back, my liver is failing , my spleen is swollen, my stomach is swollen, And I would appreciate any information that you could share with me I was told I will most likely will need a liver transplant
Thank you ❤️🙏

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stephaniescomment | @stephaniescomment | May 22 9:41am
In reply to @codaat "I have Portal hypertension. I also suffer the same pain. I just got diagnosed a month..." + (show)
@codaat

I have Portal hypertension. I also suffer the same pain. I just got diagnosed a month ago. My GI doctor has done many test. Because my spleen and liver are enlarged they have done a liver ultrasound which has measured the how it stretches it doesn’t show anything. However the blood work shows something different so he is doing an upper endoscopy. I suggest since you have portal hypertension. I would suggest You get a GI doctor and get bloodwork done and get test done to check your spleen and liver to make sure you don’t have hepatitis or to make sure you don’t have liver
fibrosis or worse. Having portal hypertension can lead to a lot of possibilities. I wish the best of luck. I do understand your pain though. I have them too.

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I have cirrhosis also that comes with enlarged spleen enlarged liver, portal hypertension which can cause varices which is enlarged blood vessels due to pressure from the portal vein. I had to have bands put around these blood vessels so they don't tear and bleed. Acistes also comes with liver disease that causes the swollen belly it's fluid from the liver. You need to have that drained. And yes there's pain all the time I also have gallstones now a new thing has raised as if that isn't enough. Heart problems! Due to too much pressure in the arteries also caused by the portal hypertension. It's starting to get scary . I wish there was a way to reverse this but unfortunately not. Only a new liver will solve this. My doctor has yet to put send me for a workup so I can get on the list but I believe it's about time to do that. All the best you all I hope this is some info you can use.

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1 reply
Mentor
Janell, Volunteer Mentor | @jlharsh | May 22 5:30pm
In reply to @stephaniescomment "I have cirrhosis also that comes with enlarged spleen enlarged liver, portal hypertension which can cause..." + (show)
@stephaniescomment

I have cirrhosis also that comes with enlarged spleen enlarged liver, portal hypertension which can cause varices which is enlarged blood vessels due to pressure from the portal vein. I had to have bands put around these blood vessels so they don't tear and bleed. Acistes also comes with liver disease that causes the swollen belly it's fluid from the liver. You need to have that drained. And yes there's pain all the time I also have gallstones now a new thing has raised as if that isn't enough. Heart problems! Due to too much pressure in the arteries also caused by the portal hypertension. It's starting to get scary . I wish there was a way to reverse this but unfortunately not. Only a new liver will solve this. My doctor has yet to put send me for a workup so I can get on the list but I believe it's about time to do that. All the best you all I hope this is some info you can use.

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Hi @stephaniescomment
I see you are a new member of Connect. Welcome! It sounds like you are managing a lot of issues with your portal hypertension and some in common with @jlf2 . How long have you been dealing with this, and do all your symptoms act up at the same time?

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2 replies
jlf2 | @jlf2 | May 22 6:27pm
In reply to @jlharsh "Hi @stephaniescomment I see you are a new member of Connect. Welcome! It sounds like you..." + (show)
@jlharsh

Hi @stephaniescomment
I see you are a new member of Connect. Welcome! It sounds like you are managing a lot of issues with your portal hypertension and some in common with @jlf2 . How long have you been dealing with this, and do all your symptoms act up at the same time?

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I have found out that all my problems including my liver , portal hypertension, gallbladder and kidney and pancreatic problems are all related to Heart failure, they diagnosed me last week and I done some research on it. All theses problems have happened within the last 2 years
My heart is only functioning @ 35 % and the prognosis is not good. I’m now wearing a life vest a ACD till they decide what they are going to do. I hope you get to feeling better soon and wish you well thank you for your response ❤️❤️🌸

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1 reply
Mentor
Janell, Volunteer Mentor | @jlharsh | May 22 6:55pm
In reply to @jlf2 "I have found out that all my problems including my liver , portal hypertension, gallbladder and..." + (show)
@jlf2

I have found out that all my problems including my liver , portal hypertension, gallbladder and kidney and pancreatic problems are all related to Heart failure, they diagnosed me last week and I done some research on it. All theses problems have happened within the last 2 years
My heart is only functioning @ 35 % and the prognosis is not good. I’m now wearing a life vest a ACD till they decide what they are going to do. I hope you get to feeling better soon and wish you well thank you for your response ❤️❤️🌸

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I am sorry @jlf2.

I imagine you are overwhelmed processing all of this.

How are you feeling?

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1 reply
stephaniescomment | @stephaniescomment | May 22 7:34pm
In reply to @jlharsh "Hi @stephaniescomment I see you are a new member of Connect. Welcome! It sounds like you..." + (show)
@jlharsh

Hi @stephaniescomment
I see you are a new member of Connect. Welcome! It sounds like you are managing a lot of issues with your portal hypertension and some in common with @jlf2 . How long have you been dealing with this, and do all your symptoms act up at the same time?

Jump to this post

Hi! I've was told I have cirrhosis 1 and a half years ago and actually it hasn't always been like this. It started with acistes(fluid in my belly). That's what alerted me that something was wrong. But it's just gradually gotten to this point. But a lot of symptoms along the way. Vomiting a gallon size bag of blood from a bleed inside, drawing fluid every couple months, then it got better for a little while once I was medicated with lasix to keep the fluid down and frequently getting endoscopy looking for bleeding. But now another bout with these new symptoms with my heart a sign that it's getting worse. So it's more like a up and down rollercoaster. With every new symptom until the Drs figure how treat it. Then it's better till the next symptom. It hasn't all been terrible even though it sounds bad . God finds us a way to deal with things we never thought we could. Make sure you find the best doctor around. And ask a lot of questions. Even if they don't like it. Who's health is it anyway. All the best to ya!

REPLY
1 reply
Mentor
Janell, Volunteer Mentor | @jlharsh | May 22 8:59pm
In reply to @stephaniescomment "Hi! I've was told I have cirrhosis 1 and a half years ago and actually it..." + (show)
@stephaniescomment

Hi! I've was told I have cirrhosis 1 and a half years ago and actually it hasn't always been like this. It started with acistes(fluid in my belly). That's what alerted me that something was wrong. But it's just gradually gotten to this point. But a lot of symptoms along the way. Vomiting a gallon size bag of blood from a bleed inside, drawing fluid every couple months, then it got better for a little while once I was medicated with lasix to keep the fluid down and frequently getting endoscopy looking for bleeding. But now another bout with these new symptoms with my heart a sign that it's getting worse. So it's more like a up and down rollercoaster. With every new symptom until the Drs figure how treat it. Then it's better till the next symptom. It hasn't all been terrible even though it sounds bad . God finds us a way to deal with things we never thought we could. Make sure you find the best doctor around. And ask a lot of questions. Even if they don't like it. Who's health is it anyway. All the best to ya!

Jump to this post

You are dealing with a lot and are inspiring in how you are handling it. It comforts me to hear God is providing the strength you need to walk this path. And now you’ve found Connect.

I searched for portal hypertension at the top of the home page to look for more discussions you may want to check out:
https://connect.mayoclinic.org/search/?search=Portal%20hypertension
How about you, are you getting the answers you need from your doctors? Are you able to focus on any hobbies, or something you enjoy?

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jlf2 | @jlf2 | May 23 9:08am
In reply to @jlharsh "I am sorry @jlf2. I imagine you are overwhelmed processing all of this. How are you..." + (show)
@jlharsh

I am sorry @jlf2.

I imagine you are overwhelmed processing all of this.

How are you feeling?

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Scared / worried/ unsure what to
But I think because of my finac

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jlf2 | @jlf2 | May 23 9:11am

Because of my financial situation
I feel it’s best to just take things one day at a time and let nature take its course. I’m on disability and with the way things are right now in this country. It’s best . I will be alright though thank you for asking have a greatday

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Mentor
Janell, Volunteer Mentor | @jlharsh | May 24 6:48am

Ah, @jlf2 I just looked at your profile and see a job history of caring for others. You have been through so much, no doubt have learned so much about things you never ever dreamed you’d want to/have to. Have you found anything about your previous work that is helping you now? Stay strong!

Do you mind sharing more about your fear with your financial situation? Are you able to get the care you need?

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