Aortic Stenosis & Valve Replacement

Posted by onthego3 @onthego3, Dec 14, 2016

Anyone have this non operable problem according to doctors and tests.its called aortic stenosis

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@danab

Hi, ill try and help but i had just the opposite problem before my transplant. I had fast heart beat or tacocardia. But i will say when ever i had any test result i was always able to talk to my doctor and get questions answered. The only part i kinda recognize is calcium deposit in the aeorta. During my transplant the surgeon noted in his report that he found calcium deposits in my aeorta but found enough soft areas to clamp off during the transplant. I asked my regular cardiologist recently about it and he said don't worry about it that's pretty common as we get older btw im 60. I hope i helped. Good luck

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I am seeing a new cardio, my other left the area. The new one has a excellent reputation in fact is my husbands cardio for 15 years. I did call the office about the Echo and the nurse I spoke with said if you received no call than don't worry, this needs to be watched for now. I see the cardio in Sept.
You had a heart transplant?
I have always had a low H/B also born with a murmur that I always had along with my 2 sisters

Thank you for being there. I guess everything stops working like it use when we age.

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I have been getting Echo's every 2 years for 20 years for a mild Aortic sclerious.

This report I had done last week says heavily calcified Aortic leaflets.

Moderate Aortic stenosis: peak velocity 3.1 m/s
dimensionless index 0.5
calculated AVA=1.50 cm

Doppler perimeters were not sufficient to analyze regurg volume

Doppler was incomplete for Diastolic flow

some trival and trace things shown in other valves.

My dx before was sclerious not it is stenosis and never have I seen anything about leaflets. All I am thinking is surgery and so afraid
I am a 77 year old female. with bradicardia.

2 months ago I had fluttering in my stomach, have IBS and was very gassy but checked my pulse and it was 143 went to the E R was admitted over night and monitored, was in sinus rythum and home in 24 hours on meds.

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@hopeful33250

Hello @elina1
It sounds like your husband has been monitored quite well. I hope that his heart cath will provide the doctors with some helpful information about the condition of his heart. Has he also had a CT scan of the heart? This is usually done prior to valve surgery.

I look forward to hearing from you about the results of his cath (if you feel comfortable posting about it).

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Cardiologist told us yesterday that this past week the TAVR procedure is approved for people with low risk. Someone in the thread said it is not done on bicuspid aortic valve. That is not true. It can be done.

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@happyheart13

They seem to go only by measurements unless you are passing out. I have another echo soon. I’ll see what it shows.

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In some people’s cases, passing out isn’t enough for them to act. Cardiac arrest is not enough for them to do anything about BAV. If you’re on medi-caid, this country is happy to watch you die, while they call you an anxiety patient. I have gotten multiple second and third opinions, but they can’t force your doctors to do proper testing, and the can’t force your doctor to diagnose it’s cardiac arrest, if they want to call cardiac arrest, near syncope. As they’ve done with me for almost a decade as I woke up and died repeatedly. We have the worst medical system in the industrialized world because insurance companies get to tell doctors how and when to treat patients.

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@linepa

I have been getting Echo's every 2 years for 20 years for a mild Aortic sclerious.

This report I had done last week says heavily calcified Aortic leaflets.

Moderate Aortic stenosis: peak velocity 3.1 m/s
dimensionless index 0.5
calculated AVA=1.50 cm

Doppler perimeters were not sufficient to analyze regurg volume

Doppler was incomplete for Diastolic flow

some trival and trace things shown in other valves.

My dx before was sclerious not it is stenosis and never have I seen anything about leaflets. All I am thinking is surgery and so afraid
I am a 77 year old female. with bradicardia.

2 months ago I had fluttering in my stomach, have IBS and was very gassy but checked my pulse and it was 143 went to the E R was admitted over night and monitored, was in sinus rythum and home in 24 hours on meds.

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What exactly do you want to know? I am 67 and have had an aortic valve replacement and then a TAVR in the replacement.

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@elina1

Cardiologist told us yesterday that this past week the TAVR procedure is approved for people with low risk. Someone in the thread said it is not done on bicuspid aortic valve. That is not true. It can be done.

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I had a TAVR because I was too high risk for open heart surgery. I was born with a bicuspid valve and had it replaced with a tissue valve which failed after 4 years and had a TAVR inside the prosthetic valve because I was too high risk for surgery.

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@hopeful33250

Hello @elina1
It sounds like your husband has been monitored quite well. I hope that his heart cath will provide the doctors with some helpful information about the condition of his heart. Has he also had a CT scan of the heart? This is usually done prior to valve surgery.

I look forward to hearing from you about the results of his cath (if you feel comfortable posting about it).

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I think it's best if I stay out of this loop. I'm not sure why this might be helpful. I understand and have empathy for all of you who have heart valve issues. Everyone is different and their heart valve are too. We feel best with what the team of cardiologists, surgeon and our NP is doing and their process. My husband is being entered in the Registry with the FDA. All is progressing. I really do wish you the best with your journey!

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@divmercy

Hi! I discovered I have aortic stenosis when I had my 2d echo done way back in 2007. The opening of my aortic valve was 1.1cm2 then. I do not feel any of the symptoms. It appears that my aortic valve is bicuspid instead of tricuspid. I was advised by my doctor to have a valve replacement but until now have not had the suggested valve replacement. I followed the medication prescribed by my cardiologist. In 2011, I decided to have regular acupuncture performed by a Chinese Eastern Medicine doctor. I also took herbal tea which their clinic provided. I stopped taking the tea after 2 years. Three years ago, I began to feel shortness of breath when I climb the stairs and when I have long fast walk. I stop carrying heavy bags. I easily get colds and cough. When I have cough, sometimes it takes 3 to 4 weeks before it is gone. I have difficulty breathing when I cough. Recently, I had the 24 hour dopler test. The doctor was worried that in several instances, my heart stop for 6 seconds but I was asleep when it happened. He told me to consider valve replacement. I asked my cargio how long will I live if i do not have the valve replacement and the answer was 2 years, and during those 2 years, I may not be as stable as I am now.

Im praying for guidance if I should go for it. There is a non-invasive replacement now that will not involve open heart surgery and recovery period is shorter than the open heart surgery.

I am now 66 years old. Pls help me decide. Thanks.

Divmercy

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If it were me I would go for it. Your young yet. My sister is 80 & had her aortic valve replaced 2 yrs ago. She's doing great. I had my tricuspid valve replaced 10 yrs. Ago and doing good also. We both had open heart surgery.

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@2752

If it were me I would go for it. Your young yet. My sister is 80 & had her aortic valve replaced 2 yrs ago. She's doing great. I had my tricuspid valve replaced 10 yrs. Ago and doing good also. We both had open heart surgery.

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I read this post with great interest, having had 3 valve surgeries in the past 50+ years and doing very well. Then I realized the original post was from 2016. I do hope that @divmercy is doing well.

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Ok, I have never had anything done in 63 years. I still have my tonsils! So, out of the blue I have been told I need to have my aorta replaced. I am not nervous right now. Am in great hands with my surgeon. He says I'm tall, thin and my heart is in great shape, except for the aorta thing. I am a teacher and really not liking being away from my students for a whole month. My dr. said he is going in from the side as my sternum is so big he doesn't need all that space and won't have to go thru my chest. So, everything is very positive. The surgery is scheduled for January 6. I'm sure my nerves will start working on me as the date gets closer. Any advice on staying positive will be greatly appreciated. Thank you sincerely.

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