When to accept permanent long covid?

Posted by gregorb @gregorb, May 8 12:33pm

Had Long Covid for 11 months. Is there still a chance it could go away or is it time to accept as permanent. Have heard give it anywhere from 1 to 2 years. Any feedback on that?

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gregorb | @gregorb | 3 days ago

In reply to @srqqd "Thanks so much...it's mostly people and technology for me🙄" + (show)

Really difficult to avoid stress completely. Seems part of every day life for me lately. Endless hours on the phone just getting people to do their jobs. It's actually more about learning to manage stress. So important to me to recover. Work at it every day. Good luck everyone.

thedreamingtree | @thedreamingtree | 3 days ago

In reply to @margaretamada "I’ve had LC since February of 2021. The PEM is what I hate the most. I..." + (show)

I'm in the same boat. I can deal with all of the other symptoms and pain but the PEM is horrific.

diverdown1 | @diverdown1 | 3 days ago

In reply to @gregorb "Diverdown1 Yes. Staying in the moment is is good way to live life in general. All..." + (show)

Yes, mornings are the worst. The fatigue, PEM and tinnitus. I also can't smell or taste in the mornings. I take Vyvanse, Cymbalta and Gabapeting, with at least 8 oz. of water mixed with Emergen-C, every morning. Some days I am better able to function after an hour or so after the medicine. Other days I do not feel like even getting off the couch. It is so frustrating. I used to be so active and was in great health. I am also experiencing joint issues now. This morning has been hard. I always check my email in the morning and see what you folks post. It is very helpful and yet I feel sad and empathize with all of you as well. Thank you all for being on here.

gregorb | @gregorb | 3 days ago

In reply to @froggiiii "Now a 72 YO female. First Long COVID episode was January 2021. Spent 18 months housebound..." + (show)

Froggiiii
Thanks for your input. Much sounds so familiar. My main symptoms right now are light nausea and lightheadedness. Nausea has always been the worst. Able to adjust to the CFS when that shows up. Best wishes and good luck to you.

firemanmono | @firemanmono | 3 days ago

Sorry I missed your post. Read most recent post may 12 2025. Hopefully that gives you a little hope

gregorb | @gregorb | 3 days ago

In reply to @diverdown1 "I am curious, did the Paxlovid provide any symptom relief?" + (show)

Took the 5 days of Paxlovid to stay out of the hospital. That decision ruined my life. I do understand that it did save others. I got the Paxlovid rebound case. 25% chance they said. Should have known better with me. 2 covid cases in ten days. Then the journey to long covid. Not terrible symptoms, and mostly functional, but still a battle for 11 months now.

mightymiserable76 | @mightymiserable76 | 3 days ago

I am looking for someone who has Long Covid issues their mouth & sinuses. It h as been over 2 years. I have had 16 doctors. How can I find SOMEONE WITH MY SAME PROBLEM???

smellvin | @smellvin | 3 days ago

In reply to @mightymiserable76 "I am looking for someone who has Long Covid issues their mouth & sinuses. It h..." + (show)

I can't help you with the mouth issues from Long Covid, but sinuses- oh, yeah. I've had sinus/eustachian tube issues (plus headaches right between the eyebrows) since I "got over" my Covid infection in June 2022. I don't have any issues with fatigue, brain fog, POTS, etc. - thankfully. I'm curious, how would you describe your sinus issues?

froggiiii | @froggiiii | 2 days ago

In reply to @diverdown1 "I am curious, did the Paxlovid provide any symptom relief?" + (show)

https://medicine.yale.edu/news-article/does-paxlovid-reduce-long-covid-symptoms-yale-led-trial-finds-out/
The trials have proved negative.

bmd | @bmd | 2 days ago

In reply to @thedreamingtree "I'm in the same boat. I can deal with all of the other symptoms and pain..." + (show)

I’m 3 years+ long covid and still experiencing the same neurological symptoms I developed after my first covid infection in 2/22. I’ve since had three more, none of which could be described as mild, in 3/23, 2/24, 3/25.
My symptoms of head vibrations, rumbling and feeling ‘full’ never go away, but headaches are better. Diffuse body pain is awful, especially in the early morning hours before daybreak, and this is a more recent symptom.Fatigue comes and goes, often with no prior physical exertion. I have fallen asleep out to dinner with friends several times. Could not keep my eyes open. I have accepted that I will have these symptoms for the rest of my life- and maybe in the one beyond as well! But I do hope those of you reading this will be lucky, and your symptoms will eventually abate. Good luck, all.