Why do I have constant pain and constipation when ulcerative colitis i

Posted by mariajean03 @mariajean03, 1 day ago

I was diagnosed with ulcerative colitis in 2016. Mayo put me on Entyvio in 2018 and I have been in remission ever since yet I suffer almost daily from abdominal pain and bloating with constipation. My doctor wants me to go back to Mayo for IBS but that is out of the question. Colace can be too hard on me at times but doctor says to take it daily as needed. Can anyone relate to any of this cycle. Thanks.

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fergie01 | @fergie01 | 1 day ago

I have had IBS-C most of my life (I’m 70). I have tried everything and Colace has never helped. I have been using Senna (vegetable lax) for several years and it works great. Earlier this year I quit eating processed foods, no chips, crackers, any boxed food, nothing with seed oils, etc., and my stomach feels way way better. Very little pain and bloating. Good luck. Nothing worse than having a constant stomach ache.

lisag03 | @lisag03 | 1 day ago

I have had UC for 25 plus years. I have never really had typical flares. I have been on Entyvio for three years and not in full remission. But improvement for sure. I have also had several colon resections for cancer. Lately I have had bloating and constipation. Because I’ve had a bowel obstruction, I panic when I’m construed for more than a day or two. I take one magnesium oxide during that time and it helps .

mariajean03 | @mariajean03 | 1 day ago

Thanks. I will give it a shot. I'm sorry for all you've been thru. Are you now cancer free?

mariajean03 | @mariajean03 | 1 day ago

In reply to @fergie01 "I have had IBS-C most of my life (I’m 70). I have tried everything and Colace..." + (show)

Thanks but senna made my pain worse. I will quit my crackers with seeds! I'm following a low fat diet. With UC it's hard to put lots of fiber into my diet.

helen1000 | @helen1000 | 9 hours ago

I have lactose intolerance. Stonyfield is my most favorite yogurt as I have no issue taking it.

standinginfaith | @standinginfaith | 6 hours ago

I have a tortous colon and I take Trulance daily in AM and Mirlax daily PM..I tried Linzess and Amtisa (spelling?) but Trulance works best for me.. I 've struggled with constipation all my life.. Colace make me hurt.. Biscadyl makes me hurt so bad I cry.. they gave me a lactulose enema one time in the hospital and sent me right home.. I'm highly milk intolerant.. horrible!! Have actually been hospitalized to get cleaned out.. have had colitis so bad I sweated out all my fluids .. couldn't get anything out up or down and blood pressure want to 60 over 40.. and called an ambulance.. it took him 10 min to get an IV started in the driveway a week in the hospital.. colitis.. just getting over another colitis and ecoli.(ER ..morphine for pain and home that night). so.. I always pray before I eat..(I have tremendous anxiety about what to eat)..and limit my diet to "safe" foods.. as much as I can.. and if I am havent't gone for 3 days.. I will do 2 miralaxes in a day.. I don't know if you can do that.. but I do.. ..lots of water and drink Kinderlite for hydration (no sucralose..it's a good gut bacteria killer) ..also warm prune juice.. Praying for you to get some relief!!

mariajean03 | @mariajean03 | 5 hours ago

Colace makes me hurt too. Miralax also. I will ask Dr. about Trulance. I drink lots of Propel and also stick to safe foods. Seedless grapes don't bother me. Do anything to get a little fiber. Thanks.