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Why do I have constant pain and constipation when ulcerative colitis i

Posted by mariajean03 @mariajean03, May 5 9:10pm

I was diagnosed with ulcerative colitis in 2016. Mayo put me on Entyvio in 2018 and I have been in remission ever since yet I suffer almost daily from abdominal pain and bloating with constipation. My doctor wants me to go back to Mayo for IBS but that is out of the question. Colace can be too hard on me at times but doctor says to take it daily as needed. Can anyone relate to any of this cycle. Thanks.

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mariajean03 | @mariajean03 | 5 days ago
In reply to @lilly315 "I will absolutely ask him. I am going back soon. You can actually mail a cheek..." + (show)
@lilly315

I will absolutely ask him. I am going back soon.
You can actually mail a cheek swab to him also. I pay $100 and he runs it through something and writes all that os off in my system, also what bacteria, viruses.. that are causing any issues.
A girlfriend with thyroid issues also.. had what she thought was IBS symptoms for a long time, tried these pure brand enzymes. It cleared up. She has no intention of eating any different than she always has, but her symptoms of what she thought was IBS are all gone, right away.

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Thanks for asking!

REPLY
junipergin | @juniperjgin | 4 days ago

With empathy and understanding,
I am thankfully healed for he most part(my top to bottom bowel problems-IBD UC-went away after completely eliminating all NSAIDs (but, oh do I feel their absence!).

The constipation - diarrhea cycle has gone on for a couple of decades.

Fiber-Con (or its generic counterparts) has been extremely helpful and helps both extremes. This, alongside good hydration and activity/exercise as possible is reliable for me.

I cannot tolerate harsh fiber supplements!

Though my belly is tender, massaging the abdomen, lifting knees towards chest, or laying prone and gently moving the body, rocking a bit from side to side, stretching limbs and allowing the abdomen to be massaged by the floor are amazing techniques that naturally help stimulate and move the bowels.

I wish you each the best as life is made difficult when the bowel rules!

REPLY
mariajean03 | @mariajean03 | 3 days ago

I will look into the fiber con. If it doesn't cause too much bloating! Thanks.

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persistentc | @persistentc | 3 days ago

My son had similar issues and also tried Entyvio with the same results. Now doing really well on Rinvoq instead.

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ericamonique | @ericamonique | 1 day ago

I've been on Entyvio since January after years of horrible diarrhea. No more diarrhea - Yay! - but now I also suffer with constipation and abdominal pain. I take magnesium L-threonate every day and about 3 days a week I also take a laxative. Sometimes just a stool softener. I do all the things - eat a whole foods diet with lots of fruits, veggies and legumes. I eat whole wheat bread and whole grains. I've tried MiraLAX and it has zero effect. I tried the supplement called "Emma" and that didn't work. I'm not able to do much exercise due to a torn Achilles but I do what I can (lift weights and stretching). I'm throwing up my hands in frustration.

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