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Photobiomodulation for Early/Intermediate Dry AMD
I was doing some research on up to date treatments for intermediate dry AMD. I found photobiomodulation was approved by FDA in November 2024. It's been successful in treating both early and intermediate dry AMD. Best for visual acuity of 20/120 or better. I still have 20/20 vision 🙏. I'm going to contact my retinal specialist tomorrow.
Has anyone heard about this from their specialist or regular opthalmologist? It sounds like a terrific leap forward to curing this horrible disease. Any thoughts or knowledge on this subject is greatly appreciated.
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I spoke to my retina specialist last week and he had heard of it. I am a candidate since it is best used for intermediate and early AMD with a visual acuity of 20/120 or better but data is limited. It has been in Europe for years. He does not have the machine and has no plans to get one soon. Hopkins would probably have one if I'm interested
I also asked about the eye drops that are in research with possible innovative results. My Dr. Told me it did not come up in his last board or whatever meeting it was but he will keep his patients posted as new develops come about.
Did you find out if you are intermediate AMD?
I have an appointment mid March.
They are Peptide eye drops and I believe research is on going for some type of drop for both wet and dry. Non invasive treatment sounds wonderful.
I have read about new therapy using a light device that is showing good results for intermediate macular degeneration. Has anyone else heard of this? Do they use it at mayo clinic? Here is a link. https://www.myamdteam.com/resources/vision-saving-device-for-dry-amd-lands-fda-authorization
There is a thread on this site about light therapy for AMD, link below. Also, if you search for Photobiomodulation or photomodulation (or photo modulation), there are some other discussions about it.
https://connect.mayoclinic.org/discussion/photobiomodulation-for-earlyintermediate-dry-amd/
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2 ReactionsIt isn’t at all true that no one will go blind from and, or at least lose all central vision. I have been taking the vitamins (AREDS), eating fish and vegetables etc. and my eyes are continuing to progress toward loss of my central vision and complete degeneration of my macula, both eyes. I am interested in the new light treatment because it is the only thing that offers any hope for me.
I’ve been trying to find out who in the US has a machine . I emailed Brightfocus and the company that makes them and no response. I have contacted companies in England and there are at least 3 that I could go to. I just hate to travel there and spend 3 weeks for the treatments when I should be able to go here in the US
I have read about it but don’t know anyone who has done it. Does anyone know about the Macumira procedure for dry AMD that is available in Canada?
I have JAK2/PV and take HU. I also have MD but it is not advanced and I’ve gone from seeing my opthamologist twice annually to just once a year. I saw her yesterday and she recommended a new therapy phtobiomodulation which I understand uses laser and red light. And, she also wanted me to start taking MaculaPM, a new supplement for MD.
She knows I have PV and take HU and said taking the MaculaPM isn’t a problem but when I googled it, it seemed to be contraindicated if you are on a chemo drug. And, despite knowing some people on Connect use red light therapy and love it, I have also read it may be contraindicated for certain cancers.
So, and realizing a little knowledge/google can be a dangerous thing and while I wait for some input from my hematologist, Im wondering if anyone on Connect who has PV and is taking HU has any experience with either thr supplement or photobiomodukation?
Thanks.
@ozziero
I'd like to know if it is available in Canada as well. I have looked it up, but didn't see a location here.