Living with Parkinson's Disease - Meet others & come say hi

Ho @hopefol. I do use the brief for my hubby as well as the urinal at night. Doc says his kidney and all is good. Right now he is back in assisted living as I have been in the hospital since Saturday. Kidney infection that went into sepsis. Improving and hope to go home tomorrow. Doc says I need a week or so to heal and get my energy back before I bring him home. Hope things are going well for youn

Thanks for checking in with us, @tntredhead. I am sorry to hear that you have been sick, sepsis is a serious matter. I hope that you will have some help when your husband returns home. I am doing well, thanks for asking. Please take care and be well. I'm copying the other members of our group so that they can see your update and wish you well. @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @aperob @caryp43 @burgle @macbeth @knightkris @IndianaScott Teresa

@tntredhead
Yes! Please rest, and feel better soon!

Macbeth

@macbeth, Thanks for your encouraging words to @tntreadhead! We all need encouraging, espcially when we have been ill.
@chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @aperob @caryp43 @burgle @knightkris @IndianaScott

Teresa, I'm interested in Parkinson's because that was the long-term diagnosis for my brother, who died a month ago. I must emphasize, however, that in his final days, neurology serious questioned whether he had Parkinson's or a similar, more widely damaging multi-system degeneration. As my sister-in-law shares information on this with me, I'll pass it along.
Martin

@predictable Thanks, Martin. Sounds good. Teresa

@predictable. I'm sorry to hear of your brother's death, Martin. Yes, there are a lot of Parkinson's disorders that are not the same as "typical" Parkinson's disease, (we don't all look and act like Michael Fox, etc.). and many are difficult to diagnose. My neurologist told me that when doctors suspect Parkinson's they try a Parkinson's med and if that decreases symptoms, they make a Parkinson's diagnosis. It could be that your brother had PD with some other degenerative disease as well. We look forward to learning more of your brother's story with a Parkinson's-like disorder, as you feel comfortable sharing it with us. My sympathies to you and your sister-in-law as you grieve this loss. Teresa

Just wanted to say "Hi". this month marks 20 yrs since my first symptom of PD... February 1997. Generally speaking, until last April (2016) my PD has been a problem but not what I would call a disability. but starting last April I have had an accelerated progression...freezing (if the doorbell or phone rings, I'm stuck to the floor) and near falls (have only hit the floor twice luckily). My medication drops off very quickly now and I have to plan trips to the gym or grocery store around my "window of opportunity" as I call it. Well, that's all for now. 🙂

Welcome David. I'm glad you took your 20 year anniversary as an occasion to share your PD experience with the group. I'm sorry to hear about the accelerated progression however. Have you made any changes in your home to help remove obstacles or reduce the harm that may come from falling?

Hello @david59. Thanks for your post. It is good to have you as part of our group. I'm sorry to hear of the sudden change in your symptoms. This must be very difficult for you. What does your doctor say about this change in your condition? Will new meds be tried? It sounds as if you are dealing with this change as best as you can. Please meet some of the other members of our group, @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris. These folks have proven to make the most of their life with PD and I think you will enjoy getting to know them. They may be able to offer you some perspective on how to handle these sudden changes. Keep in touch with us, we look forward to getting to know you and supporting you through these changes. Teresa