Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Parkinson's Disease Support Group.
@macbeth Great message!
Great song and wouldn’t that be nice -” if we all did as the words in the song” a great song- one of my favorite.
@johnjames and @macbeth I’m just sure that what the world needs is more singing. You have both lifted my spirits with these posts!
Hi @knightkris and happy new year! I’ve been thinking about you. As I recall you posted at the end of the year that you would be doing some counseling with the PD Society of BC Canada. Has that been helpful to you? Let us know if you have been able to find a support group to help you through this time of loss. We care! Teresa
Thank you for writing. I did have an appointment today with the Parkinson’s society but the counselor was sick. Si it is put off for a few weeks now. And thank you for mentioning my loss. I have been looking for an ongoing group for this. As wwll as a support group for my parkinson’s. I will write again when at my computer
@knightkris Thanks for the update! Yes, keep in touch and let us know how you are doing.
Hello @tntredhead I’ve been thinking about you and your husband. How are you both doing? When you have a moment, give us an update so we can keep in touch with you and your needs. Teresa
I, too, send you kind thoughts regarding the loss of your mother. I invite you to join the Caregivers group on Connect. In particular, I think you might be interested in sharing in this discussion
– Loss and Grief in Caregiving http://mayocl.in/2hBpFNf
Furthermore, many hospices, including those in British Columbia, offer free support groups for grief and grief counseling. They are available even if you did not use the hospice service with your mom. You can find out more about grief counselling from Canadian Virtual Hospice http://www.virtualhospice.ca/ Let me know if I can help you find a local hospice. I used to work in this area.
Thank you Colleen for your reply
It is the first anniversary of my mother’s passing which makes it very difficult for me. Not even being able to give my mother a memorial service. Adding this to the list of everything else that is going on is making for a very depressing time for me.
I have been in contact with the BC Bereavement society and they have given me a list of groups in the area. Not many within my area. I have contacted the White Rock Hospice society and they have nothing happening at this moment. They are trying to get a monthly group going, but this will take time.
As mentioned I did have an appointment with the Parkinson’s society for counseling, the counselor was ill so it has been postponed for a few weeks. But I will be on the phone with them on Monday to find a support group around my area
It seems I have so much going on that I am being bombarded with problems. I just wish that it was just one problem,not many.
Thank you Colleen
@ggopher Hi Steve: It’s been awhile since we have heard from you. How are you doing? Is the Sinemet with the carbonated beverage still working well for you? Have you started any new exercise programs? Check in with us when you have time and let us know how you are doing. Teresa