@johnjames Was this regarding finding a support group in the Phoenix area? Teresa

Hi, @ggopher -- wondering how things are going with the Parkinson's, and also how that bucket list of yours is coming along?

One day closer to a cure every day.  Honestly, at this point my back causes me more issues. And a sick cat.

Due to my aversion to flying (several incidents in Nam including being shot down and I wasn’t even a pilot) we took a cruise ship to Hawaii.

Five days on the water going over, 5 days touring the islands and 5 days back. Guess which 5 days were rainy and cold? Yep. Had fun anyway. Met some wonderful Brits and we’ll be visiting them at their home next year. Spending a week with my best friend

and his wife on a Caribbean cruise in the fall. Doin’ what I can while I can.

Saw my neurologist a week ago. No increase in Sinemet (1.5 tabs 5x) or Azilect but a few months ago he added a half anti-anxiety pill 2x as needed and it helps a lot. I’d been having some issues with rapid shallow breathing with mental or physical effort.

Can’t imagine why I’d be anxious about anything. I’ve played with timing and it doesn’t appear to cause any issues so I consider life to be Golden right now. Oh, came up a little anemic so added a vitamin with iron timed between Sinemets. Started a probiotic

a few months ago and rarely need Miralax now. 

Now I have no more secrets.... Doing great living on the sunny side of the lake.

Steve  

Hi, @ggopher -- a cruise to Hawaii sounds marvelous, the weather notwithstanding.

Glad the anti-anxiety pill is helping.

I wanted to point you to these other discussions on Connect about Parkinson's and mood, if you've not seen them before? If not, these might be of interest to you and places where you'd also like to join in:

- https://mayocl.in/2HpAKlq
- https://mayocl.in/2JjSjzI

I got a “page not found” on both and tried manually entering them on my browser with the same result.

Steve  

Hi, @ggopher -- not sure why that might be, but no matter. Here are the full links. Hoping this helps:
https://connect.mayoclinic.org/discussion/moods-and-parkinsons-disease/
https://connect.mayoclinic.org/discussion/parkinsons-and-moods/

I’m already part of the Moods connection though it isn’t very active.

Steve  

Pull Test
Roys Pull Test 08/14/2018
First result is typical when one has Parkinson's. Second pull after foot is positioned for better recovery and balance. I was first diagnosed with Parkinson's in the year 2012. I credit my good condition to Doc. Costantini's high dose thiamine hcl advice.
(continue)
B1 Thiamine HCL therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to IM injection B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamin hcl stops the progression forever...".
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol.

Do you know the possible adverse effects of focused ultrasound treatment on vision?

I am looking forward to being with this group. I am 74 and diagnosed this past year with Parkinson's. I have leg and hand tremors, soft speech and difficult movement. I am married and my husband is very helpful. Will be keeping in touch. Thanks