johnjames, Colleen connected your name and mine, I think because I have been involved in the PD/mental health combination for quite awhile: Bipolar Disorder for some 40+ years and PD for who knows how long. I think of them as the two "rulers of my life" - and I am not always sure which one is on top. We talk about stigma a lot with mental health, but what PD people 'receive' from their friends is about the same thing! Really the only thing you can do is get to the point where you know "you are the one in charge of you" and what the others think is really their problem. It is easy (and I know it first hand) to pull back and just remain alone, but being the 'only one in charge of you' when you pull back, the 'only one you are hurting" is also your. Want to talk more, just let me know! Trouble4343

@johnjames You are right! He does not turn the other way, He is always there! I have no doubt that you will have the courage to walk through this valley as you have walked through so many others. (Also, if you give me the general geographic area where you live I might be able to find a PD support group and then you can make a decision to go when you feel ready.) Blessings!

Thanks- I live in the Desert Ridge area, and looking for a group that starts after 11am. I can't get moving until that time, the body just doesn't work. Thanks again JJAMES

Hello JohnJames

I do understand very much what you are going through. I took care of my mother for over a dozen years and through out that time, all of my friends stopped talking to me. My mother's family, the rest of them, including my sisters, stopped coming to see mom or just came once in a while. My answer has always been, buck up, it is your mother and to bad if you don't want to see her that way. Get a grip.

But during my mother's last years of life I was diagnosed with PD,then the next year I was diagnosed with Fibromyalgia, then this past year diabetes, This past January is when my mother passed away, So I am dealing with this loss as well. This compounds the situation further. . Plus everything else that was wrong with me before these diagnoses. Between my mother and my friends thinking that I could be making better use of my time, ( Taking care of my mother was the biggest gift I could of every received), car accidents and everything that has happened since, I don't have any friends left.

I know what it is like to be alone, I have experienced this allot in my life.,But being lonely, this is something different. This I can't get use to. I think it is everyone's loss that they can't deal with these issues. It should bring people closer, but most are afraid of things they can't understand. They are afraid of their own mortality. Again their loss.

John if you need to talk or write in this case, feel free to do so. I do understand what you are going through.

Kris

@knightkris Thank you for sharing your story (and your mom's story) of loss with @johnjames and with the rest of us at Mayo Connect. Loss is a real part of disabling diseases. We not only lose our physical abilities and our strength but we can also lose the company of our friends and family. I suppose that is why I'm such a strong proponent of support groups. Support groups help us to adjust to a "new normal" and give us "living examples" of people who have walked the pathway that we are walking. I know it is very difficult for some people to make that step to attending a support group, some people are "private" but just attending, even if you don't share or say anything, provides a great place of solace and support. It also teaches us that we are not really alone nor do we have to be lonely. There are others who are willing to carry our burdens with us. Best wishes as you walk this journey of loss. I would encourage you to find a grief support group in your area. You are dealing with many losses right now and the loss of your mom is big one. Best wishes and keep in touch with us. We are "all ears."

Hi @johnjames. I'm assuming that "Desert Ridge" area is in Arizona? If you could provide a large city, that might be helpful for my research. Thanks!

Thank you for your insight. This coming month I will be attending my first couselling session at the PD Society of BC Canada. From there and maybe before I will search for a support group in my area. I have attended grief couselling for 6 months, plus other couselling ( couldn't afford to continue) so I wait.

@knightkris Thanks for letting us know, we will continue to care about you. Keep in touch!

@johnjames Hi JJames: I did a little research for PD support groups in the Phoenix area and came across the website for the Barrow Neurological Institute (the Mohammed Ali Parkinson's Center). The website lists several support groups, many of which are afternoon/evening meetings, including locations in Mesa, Phoenix, Sun City, etc. Here is the website. https://www.barrowneuro.org/patients-families/find-a-support-group/
Keep in touch and let us know how you are doing. Best wishes for 2017!

Hello @tntredhead I've been thinking about you and your husband. How are you both doing? When you have a moment, give us an update so we can keep in touch with you and your needs. Teresa