Does anyone have a solution to help manage Reclast side effects?

Hi - I had Reclast over a year ago and have had pain and fatigue ever since, as well as occasional dizziness. My symptoms are being treated as fibromyalgia, as all neurological and rheumatologic tests came back negative. I’ve tried steroids and gabapentin for the pain and am now on Lyrica. Life as I knew it is over, unfortunately, as I’ve gone from being physically active and working to having to stop work and just managing pain and fatigue. I’ve done a round of TMS, which helped somewhat, and am about to try acupuncture.

4 months for me of awful side effects. Looks like it lasts a while

I understand what you are going through. I also had awful side effects from Reclast and it’s been 4 months and I still have problems. I thought I was going to die. How dare they be so dismissive of your feelings.
I truly don’t think there is anything that can be done unfortunately. I’m constantly lightheaded and have heart rate issues. It awful. I tried to file a complaint with the FDA and couldn’t find a send button
Stay strong. I know how awful it is

Just remember, you did not fall or get hurt so the pain is from the infusion! It is a lot like over doing an activity. Rest when you feel the pain and try not focus on the on it; even if it is talking to someone on the phone or playing a game of solitaire! My shoulders and especially my left foot burns so bad at times and I worry about how I am going to be able to mow my own lawn. I try not spending a lot of time focusing on this; I need to do it and that is that. Spending time focusing on how I am going to be able to mow my lawn is emotionally draining and I get discouraged. Therefore, I move away from it to something completely different. I know I probably sound a little off my rocker but I strongly feel that our brains are extremely powerful and are there to help protect us. Pain has always been an alarm to the brain to help protect us; we need to help the brain realize this pain is safe as we have not been physically injured to create this pain. Therefore, this pain is okay so the brain doesn’t keep triggering our thoughts that were unable to do anything due to the pain. It’s hard to explain, but I honestly now days know I am hurting but it don’t stop me from doing what I need to get done and hopefully the Reclast eventually will have less impact on my daily life! Lots of Good Luck! It does suck, but we will get through this and be able to enjoy life again!

I am better WAS a very active person
Since my Reclast infusion I am confined to a chair with brutal pain in my bones: femur and thoraxic spine
It is sharp burning oppressive

My endocrinologist never told me about these side effects
Only a flu symptom for three days!!!!!

Now it can’t get out of my system and my life was completely disrupted
No one takes responsibility

Please anyone listening don’t do it!!

I had my infusion in June 2024….Some 10 months ago. I saw my endocrinologist in November and shared my experiences and on going issues; nauseated, exhausted, pain in both shoulders and pain in the bottom of my left foot. He shared that these things that I am experiencing has nothing to do with the infusion and recommend physical therapy and for me to see a neurologist. Well, I have been doing physical therapy and still going. Seeing a neurologist required a referral from my primary, who did not see the need. Ten months later I’m called to come into the endocrinologist office for a consultation with their pharmacist. In doing so, it was expressed that they wanted to give me a different medication that would be in the form of a shot instead of the infusion, to which I declined. A day later I received a follow up call suggesting that I have scan preformed as soon as possible to see where my scores are at and to also see if the Reclast infusion did anything for me and they also sent a referral to my primary and suggested that I see a neurologist for my on going symptoms; I go this coming Monday for my scan test. They then scheduled me for a follow up appointment with my endocrinologist; January 2026!
I do have some underlying medical issues that could be contributing to the symptoms ; Ankolosing spondylitis, bladder cancer treatment (5x) and a constant burning sensation in the bladder area caused by the treatments. So, maybe I am a little more sensitive to these medications. All I read about Reclast and they take ZERO acknowledgement for these symptoms and then say, well maybe for a short period of time but not 10 months out! And to conclude; I’m told that it is okay to take your time and really think about the benefits of receiving this injection that has very little side effects; severe lower back pain and/or jaw discomfort; like I really want to take a chance on either !
The more I sit and think about the issues the worse the symptoms! Honestly, our brains and developed to assist in our bodily functions and to prevent us from doing things that can hurt us….not always providing the correct information. I know I did not injure myself to cause these pains and feel that I need to keep sending the message to my brain that this pain is only temporary and only caused by my poor judgement of receiving an infusion that had so many side effects.
Try, and I emphasized really try and focus away from the pain and focus more on your daily activities! Our Brain has alerted us there is an internal problem. Okay, I acknowledge this, now I’ll take control from here out and just really try to focus less on the pain and more on your daily task and hopefully, eventually the pain will lessen and life will become a little more manageable!

Just wanted to make sure you've seen this https://link.springer.com/article/10.1007/s10787-017-0365-9 from eight years ago.
Sorry for your struggle. Thanks for warning the rest of us.