Life while being treated

Posted by winema @winema, Mar 25 6:33pm

I'd like to learn from others who are undergoing the oral antibiotic treatment for nodular MAC. I am now considering treatment (was diagnosed 13 years ago yet was then asymptomatic--long story), but hear such awful things about it--which gives me serious pause. I also read conflicting things about how long treatment should last. How do you feel, can you continue normal physical activities (I ski, play pickleball, ride horses, "do" pottery), have you encountered side-effects? Did you test negative, finally, for MAC but it returned? Or not. Thank you for anything you can share.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@catfish3012

Does anyone else have annoying cough at night...hard to get my 8 hour z's in...have elevated bed and pillows. Nothing helps.
Don't cough at all during day.

Jump to this post

I have found that if i am not well hydrated, I cough at night. It's a bit of a delicate balance though. If I drink too much water after 7 pm, I don't cough all night, I pee!

REPLY

i too, am on meds. Not able to do ethambucol because of eye issues. So i am on rifampin and arzithromycin, everyday, for the past year. The MAC make me extremely tired and SOB. No cough, no sputum. See the ID soon and going to ask that i be taken off the rifampin because of the side effects. After a year of tx, i feel no different. My PCP says my chest xrays will always look messy because of the MAC and my scans show no improvement. Dont know what to do now.

REPLY

It’s good to see you’re still getting around and active but if it falls the path like mine did, I was like that for years I was fine. I didn’t feel the side effects at all from it and I didn’t do any kind of treatment but then one day about eight years ago, I was mowing the lawn and started feeling Fatigued and I progressively got worse from then now I’m taking the antibiotics been on them for about eight months and in the last year, it’s gotten a lot worse. I got to the point where I could barely walk. I couldn’t even walk through the store. Couldn’t walk up a flight of stairs without getting winded couldn’t work in my garden without getting winded so now I’ve taking it serious. The doctor says I’m down to use him 20% of my lungs and I’ve been on the antibiotics for eight months now I’m getting around a little better but I still don’t feel it’s gone. I can walk and get upstairs. I still can’t exercise though. I’ve cut out fast food cut out sugar changed my eating habits lost 75 pounds. I take supplements I drink Mullen tincture.

REPLY
Please sign in or register to post a reply.