Life while being treated

Posted by winema @winema, Mar 25 6:33pm

I'd like to learn from others who are undergoing the oral antibiotic treatment for nodular MAC. I am now considering treatment (was diagnosed 13 years ago yet was then asymptomatic--long story), but hear such awful things about it--which gives me serious pause. I also read conflicting things about how long treatment should last. How do you feel, can you continue normal physical activities (I ski, play pickleball, ride horses, "do" pottery), have you encountered side-effects? Did you test negative, finally, for MAC but it returned? Or not. Thank you for anything you can share.

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@catfish3012

Does anyone else have annoying cough at night...hard to get my 8 hour z's in...have elevated bed and pillows. Nothing helps.
Don't cough at all during day.

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I have found that if i am not well hydrated, I cough at night. It's a bit of a delicate balance though. If I drink too much water after 7 pm, I don't cough all night, I pee!

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