Anyone from Canada?

Posted by amn17 @amn17, Sep 19, 2018

I would like to connect with anyone from Canada...

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Note from the Moderating Team
In addition to connecting with fellow Canadians here on Mayo Clinic Connect, you can also reach out to the

Bronchiectasis/NTM Organization of Canada
Esther Steinberg, Lead
Canada@ntminfo.org

See the contact information for Canada and other country support groups here: https://ntminfo.org/local-support-groups/

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Because Mayo Clinic Connect is a public site, we ask members not to share personal contact information as it is available for everyone to see. It is advised to use the secure private message option to protect your privacy if you wish to share your personal contact information with other members on Connect.

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@tevadog

What is a picture line. I have BE with MAC and another infection plus depression, anxiety with adhd. Im new to this site tho have been years with BE on antibiotics, too, when my cough is bad or bloody phlegm. Cipro really helps the infections.

I'm interested in what others are doing which helps them. Good luck.

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PICC line is peripherally inserted central catheter. Line inserted into arm that gets threaded through a vein to near the heart. Used to adminster IV meds. Infusions can be done at home with medical supervision and training. I am going to be getting antibiotics that way every 8 hours.

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Canadian Bronchiectasis/NTM Support & Education Group

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@tevadog

What is a picture line. I have BE with MAC and another infection plus depression, anxiety with adhd. Im new to this site tho have been years with BE on antibiotics, too, when my cough is bad or bloody phlegm. Cipro really helps the infections.

I'm interested in what others are doing which helps them. Good luck.

Jump to this post

I am the Canadian Bronchiectasis/NTM Education and Support Group Coordinator.
Message me and we can set up a time to have a phone call.

Esther

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@payette78

PICC line is peripherally inserted central catheter. Line inserted into arm that gets threaded through a vein to near the heart. Used to adminster IV meds. Infusions can be done at home with medical supervision and training. I am going to be getting antibiotics that way every 8 hours.

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I'm so sorry. Is this for bronchiectisis or it's infections. What is this concern?

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@tevadog

I'm so sorry. Is this for bronchiectisis or it's infections. What is this concern?

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NTM infection, specifically mycobacterium abscessus (similar to MAC but a different bacterium). M. abscessus is difficult to treat because it is resistant to a lot of antibiotics but hitting it with 3 IV ones initially is standard from what I have read. Also have bronchiectasis.

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@fingerlessknitts

Hi I’m also in Canada
45 miles north of Barrie on the shores of Georgian Bay in the boonies. Took forever to be diagnosed something like 10 years
Bx MAI very mild I do mucus clearances and have a puffer to help with that otherwise quite healthy
Ive been through 2 family drs both have now retired so I’m left without one. dr who diagnosed by Dr Tailor his office is in Barrie

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My dad grew up in Midland. Love Georgian Bay.

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@helpme33

I am the Canadian Bronchiectasis/NTM Education and Support Group Coordinator.
Message me and we can set up a time to have a phone call.

Esther

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Esther can you post the Canadian group meeting info here?

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In reply to @mholm "Thanks" + (show)
@mholm

I will call you tomorrow. When is a good time?
Esther

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