Anyone from Canada?

Posted by amn17 @amn17, Sep 19, 2018

I would like to connect with anyone from Canada...

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Note from the Moderating Team
In addition to connecting with fellow Canadians here on Mayo Clinic Connect, you can also reach out to the

Bronchiectasis/NTM Organization of Canada
Esther Steinberg, Lead
Canada@ntminfo.org

See the contact information for Canada and other country support groups here: https://ntminfo.org/local-support-groups/

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

helpme33 | @helpme33 | Apr 25 10:40pm

In reply to @payette78 "Esther can you post the Canadian group meeting info here?" + (show)

I will do my best. The next meeting is tentative for June 16th with Dr. Marras, well known physician/researcher with Mac/Bronchiectasis. I am also working on a support group meeting.
Thanks

payette78 | @payette78 | Apr 26 7:44am

In reply to @helpme33 "I will do my best. The next meeting is tentative for June 16th with Dr. Marras,..." + (show)

That would be awesome.

Colleen Young, Connect Director | @colleenyoung | Apr 26 8:54am

In reply to @helpme33 "I will do my best. The next meeting is tentative for June 16th with Dr. Marras,..." + (show)

Hi @helpme33 Esther and all. Mayo Clinic Connect is a public forum. Personal contact information have been removed from your posts. It is recommended to use the secure private message function to share phone numbers, emails and other personal info.

helpme33 | @helpme33 | Apr 26 10:07am

In reply to @colleenyoung "Hi @helpme33 Esther and all. Mayo Clinic Connect is a public forum. Personal contact information have..." + (show)

Thank you

mholm | @mholm | Apr 26 6:07pm

In reply to @helpme33 "I will call you tomorrow. When is a good time? Esther" + (show)

Just text first. Sunday, Pacific Time after 11 a.m. Anytime Tuesday.

attracta | @attracta | Apr 29 3:54pm

In reply to @helpme33 "We have an Education and Support Group in Canada - our meetings are on zoom. Contact..." + (show)

Hello Esther,
I believe I replied to you privately and you responded but I can’t find your mail. Where might it be hiding?
I live in Toronto with NTM!

cjsummer13 | @cjsummer13 | Apr 29 4:47pm

Hi everyone. I’m new to this so I hope I can connect with anyone that has bronchiectasis and Mac. I’m living in Ajax, Ontario Canada. I found out that I had bronchiectasis last fall and now recently have been told I have Mac. Does anyone have ideas of how to deal with the fatigue?

helpme33 | @helpme33 | Apr 29 8:40pm

In reply to @cjsummer13 "Hi everyone. I’m new to this so I hope I can connect with anyone that has..." + (show)

Good evening
We have an Education and Support Group in Canada - our meetings are on zoom.
Contact me anytime!!
Esther

Esther Steinberg
Bronchiectasis/NTM Organization in Canada

helpme33 | @helpme33 | Apr 30 9:05am

In reply to @attracta "Hello Esther, I believe I replied to you privately and you responded but I can’t find..." + (show)

Canadian Bronchiectasis/NTM Education & Support Group

westcottkm3040 | @westcottkm3040 | May 6 6:27pm

In reply to @colleenyoung "Hi @amn17, welcome to the MAC group on Connect. Allow me to introduce you to fellow..." + (show)

I’m from just outside edmonton. Seeing dr cooper at the u if a. He is amazing.
Was diagnosed 10 years ago. On my third round of the three cocktails of antibiotics. Temp went on inhalation. Amakacin. Had some issues with that so went off everything a bit. And just recently back on the 3.
Never had issues with the 3 prior. But lots this round. Not sure if my body is just tired of them.
Also of advanced BE. Seems like the two go together?
Tired of being tired.
Have a doodle. So walk him and golf on weekends. But that’s a bit exhausting now.
Is this as good as it gets now ?
Anyone else on round 3 or 4?

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