My husband has mobility issues

Hi Cindy
For my speaking, I've been doing a therapy "speakOut". It's around 30 minutes every day. You can find them by YouTube every day. It's been doing a huge difference. And try to find a certified speech therapist. I hope this helps both. Take care.
Kiki Noronha

Thanks, Cindy for the information. This is very helpful. I understand.

Attitude is so important.

My husband has Parkinson’s. We are newly married: October 16, 2022. He was having difficulty getting into his Kia Soul. He is tall, uses a cane, and he had trouble folding into and out of the car. He never owned a car until his 40s: always rode a motorcycle. He found one on Facebook marketplace: a Moto Guzzi that had been made into a trike. The look on his face when he swung his leg over that seat sealed the deal. We traded his car for the “Frankenstein” (my nickname for his ride). He will ride until he can’t and then I will ride him!!

Hi. Getting up is indeed a challenge! We found, on Amazon a hand-held device where if I stand sideways, feet apart I can be easily balanced and strongly, securely help my husband up. We have one in 2 rooms. We also bought a slide-under the mattress bed rail for getting out of bed. The chair thing would help with the car, also.

I have found this device very helpful for chair lifting. I have back issues, so stand with a wide stance and gently pull to assist. Same with car. A short bed rail (under the mattress)—a lifesaver!

Hello @suebullmc,

What a delightful picture. I enjoyed your last sentence, "He will ride until he can’t and then I will ride him!!" After reading some of your previous posts, it sounds like you are enjoying life in spite of PD, which is great.

Are his PD symptoms well controlled presently? What are his most bothersome symptoms now?

Kevin had never had any physical therapy despite 2 strokes, open heart surgery, and bypasses in both legs (PAD and Type 2 diabetes). He began PT in November 2024 and finished in February 2025. He also uses a Revitive machine and frankensense oil for neuropathy in his feet. We have a rescue dog, Beauregard (Beau is what we call him), and he walks him, lets him out, and feeds and cares for him: I never volunteer so he has to get up. Currently, Kevin does not have a neurologist but we are lined up for an appointment in October at UNC's Parkinson's Foundation of Excellence. Kevin takes ropinorole and Nuplazid: he has an occasional jerky movement but the Nuplazid had done away with his hallucinations. His short-term memory sucks but that lets me get away with leftovers (LOL). But I am always honest with him and "remind" him rather than tell him. I am always reading and researching because I want him around and comfortable as long as possible. We have looked into the protolcols promoted by a naturopathic doctor; still researching. Our faith is strong and our church is very supportive: he was the center of attention when he rode in on the trike to help cook Sonrise breakfast at 5 am! He is always looking to get better and he has definitely improved. We are blessed!

A rail , helps getting out of bed!
There is a rotating car cushion ! That is helpful!
A lift up lounge chair ! Helpful!!

Great that he can still play golf and drive. I have a video of my husband when he couldnt get out of car and was layed back in the seat. Neurologist started him on carbidopa levadopa. Not a fix all but in hindsight it must have helped. My husband no longer drives and can barely walk with a walker. Unfortunately, he will probably be wheelchair bound in the next year. He is so weak with his mobility.

I will tell how I helped my brother and my spouse. Both have Parkinsons. My spouse sits up and dangles his legs. He then puts one hand on each leg and pushes up. It worked. When my brother had open heart surgery after being in early stages of Parkinsons , had a large bed. I stayed with him for 4 weeks. I made his bed across the bottom of the bed. He of course was using his heart pillow. He was able to get up with a maneuver of bring his legs over and then sit up. I was so proud of him. I was also able to get him to strengthen his legs with the movement of doing a marching step and walk beside me. He was weak at first. He was amazing at going everyday. The nurses they sent out took his vitals and did nothing. The OT had no info to share either. I asked to speak to a Case Mgr. before he would be discharged. She said she had nothing to offer. Really, he was in CCU for several days. When he went to PCU. He had on PT a few feet from his room. I walked with him and he was to weak to be released. I also asked for a Nutitionist . She was the only person who acted like she knew her job. I asked her to please talk with the Case Mgr.if possible. We went to my brother's home. I had already threw out everything and the fridge and filled it with heart healthy food. I taught him how to make meals. He was excited when he could ride in the back seat . I bought him some clothes as he lost so much weight. He was a great patient for his older sister. Finally the nurse called she sent the RN to a PO box number. I thought how dumb can you be. I had to get my brothers job to realize he had Parkinsons and needed therapy. I even had to check on his short term and long term disability from not his office but.. another state. I also did FMLA. I made sure everything was taken to the thoracic surgeon and the cardiologist. I could not believe when there was a call about this and they told us that he needed this done. I really enjoyed telling them I have already did what they were asking. My brother was flabbergasted that I could do this with a calm voice. We had tons of fun while he was cooking . He asked why I did all this..my comment was I love u. My spouse had not been given his dx. of Parkinsons yet. He said I want you to take care of me when I am sick. My point finally is never underestimate what your loved one deserves. I love both of them so much . My brother is in Stage 5/ hospice. He had DBS. It did not help him like they promised. He lives in a different state.
My spouse finally was able to see a Movement Disorder Neurologist. I am praying he gets the care he deserves. If not I will talk with someone and make sure he gets everything he is promised. Pray for us! Thank you everyone. 🫂 🤗