Living with epilepsy - Introduce yourself & meet others

Hello, I was recently diagnosed with Epilepsy. It is a generic diagnosis as all my tests (MRI, EEGs, CT scans) came back normal. My current neurologist put me on Keppra. My first seizure was at the end of March, 2nd one was May 4th, and 3rd was May 13th. I was doing really well when my Dr. increased my Keppra until this past Friday....I had 4 mini seizures and then a tonic clonic seizure. My Dr. increased the Keppra again on Friday, but Saturday I had another seizure. I never did get a second opinion and am starting to think I should. The last 2 seizures I've had I have been conscious throughout. It is soo scary. I'm very new to this so I wouldn't mind someone else's opinion....

Hello folks
I'm 61 yo and have had 4 seizures in 2 years at work,,my last seizure was June 22, 2017. The company we were working for wanted me off their site asap.Of course my supervisor to me to the ER. I had a EKG and MRI, said my potassium was very low but insisted I go see a neurologist when I got home. But what puzzels me is the 25 mg 4 times a day of Librium. In1995 I broke my neck 2 times within days apart, had to wear a halo. My question to all of you, that was 22.5 years ago could it be from the car accident? And does the dosage of the Librium sound like a lot?
Thanks for taking the time to read this.
headcase

Welcome to Connect, headcase1710.
I moved your message to the Epilepsy & Seizures group so you can meet others who are talking about seizures and medications. I'd like to introduce you to a few members. Please meet @dawn_giacabazi @ketomom @stayfree @vanessapaugust @thoferer81017. Also meet @bettyann who has taken Librium.

From what I read, chlordiazepoxide (Librium) is used to treat seizures, anxiety and sleep disorders. It is part of the class of drugs known as benzodiazepines. Headcase, have you been diagnosed with epilepsy? Do they know what is causing the seizures? And why was Librium chosen as a treatment.

Welcome @ahernandez.
Do you know why the doctor increased the dosage of Keppra?

They increased the Keppra because i had seizures this past weekend. I had been seizure free for about a month.

My name in here is robertjr .Ive had grand mal seizures since i was 5.So great being able to come to places like this and talk to others about our problems.Growing up always felt like i was only one with grand mals in the whole town.When i was growing up wasnt told much,back then seemed like wasnt told much.Kinda always inbackground at school,no sports no proms.Evenafter school done fired ,,so many times after a seizure.luckly founda wife and a company that accepted my problems and was ok with my lost time.One big mistake for me was smoking,told i have copd 12 years ago .quit smoking 8 years ago but now have very sever copd ,on oxyjen 24/7.Been seizure free over 4 years but breathing is a big problem now.Starting to wonder how bad things might get on next seizure.Right now anything physical im huffing for air.A seizure with convultions last 2 to 3 minutes..I guess having someone call ambulance and hope is all ican think of.Havent gotten any real answers yet,maybe someone here can help.

My name is William and supposedly I fell off a swing set when I was two years old. I haven't had a seizure until i was 46 years old (2011). The doctors took a golf size object out of my head which consumed some of my brain. So they had to take some of that out as well. I was out drinking with the guys from work (which I did quite frequently). My guess is that led to the seizure, but not sure. My seizures isn't quite as frequent as most of the people on this board. I was on Keppra at first for three years. Prior to the seizures, I was getting Exceeds on my reviews at work. Immediately after the seizure (and after my rehab) I was getting does not meet. My doctor recommended I get a neuropsychological evaluation. I took it and the results were positive that there was some brain deficiencies. Which only made sense considering the operation. To make a long story short, she could send me on disability, so I went to another doctor at a different hospital. They switched me to another medication (Oxtellar XR). I've been on this med since 2015, but lost weight about 15lbs and have double vision occasionally. I'm not sure what to do considering the Keppra didn't seem to work and I'm having problems with the Oxtellar XR. I'm also taking Carvedilol 25Mgs twice a day, 5mg of amlodipine, 5mg of Lipsinopril. My last seizure was January 17, so it could be that I have another one coming. Or, the fact that my double vision have become more severe and i almost pass out with it might be the alternative to an actual seizure. Perhaps someone can help me withe this one.

Hi William, welcome.
What was the mass that you had surgically removed? A brain tumor? You mentioned that your double vision is getting more severe. Is it constant?
I'd also like to introduce you to another new member, @ahernandez who was asking about Keppra. I hope you can share your experience with him.

Hi Robert, nice to e-meet you. Having seizures can definitely be isolating. So few people understand what is happening. You mention that your company was accepting of your medical history and related absences. Was it also an environment where your work colleagues were willing to learn more about epilepsy and seizures?

Am I reading your message correctly that you were seizure free for 4 years but the seizures with convulsions have returned now?

Yes, it was a brain tumor, but luckily the biopsy came back negative. The double vision almost happens once daily, but the worst part is sometimes I lose control of my body. As if my wife has to help me to the bedroom to sleep rest it off.