Does anyone have a solution to help manage Reclast side effects?

I experienced shoulder pain, left leg pain, left foot pain, nausea and the feeling of be exhausted all the time. I’ve been going to physical therapy and most symptoms have diminished to a degree after 9 months. I’ve spoken with the endocrinologist and he did not think it was from the Reclast; I do! Knowing that the symptoms from the Reclast, knowing that you have not done anything else to cause these symptoms. Try to exercise, stay active knowing that this will pass! Hopefully! I’m trying to look at it positively! Your mind is very powerful and if you can convince yourself that you are in control of these symptoms and try finding other things to do outside sitting and thinking about these symptoms, Hopefully, in time the symptoms will diminish; that’s my hopes anyways. I retired in August of 2023, in July 2024 had the infusion and the day after the infusion, have had symptoms ever since; although I can say they have lessened and hopefully continue to lessen. Worst part is, endocrinologist wants to do another infusion this coming June and I Honestly, do not know what to do! I’m 68 years old and do not want this to continue

@dingus pharmacists seem to know more about side effects than doctors, in my experience. I am not sure the doctors even google the online lists! Again in my experience I hear "I have never heard of that" or "Noone else has reported that to me."

If you talk to a pharmacist, that helps because you can then tell the doctor that the pharmacist said such and such rather than the typical "I read that" or "someone on a forum told me that" 🙂

My primary doctor prescribed Reclast. On the way home after the infusion, I developed a bad headache and nausea. For the next 45 days, I had Covidlike symptoms and couldn't clean my house. My primary doctor and an endocrinologist both insisted that I soon would feel better. They wouldn't prescribe anything as they said drugs might cause allergies that would complicate symptoms. I contacted the FDA and filled out a questionnaire. No reply was forthcoming. I journaled my symptoms and called my doctors. They both said, "You'll soon be better. You are not dying." Now I'm afraid to try another drug that my doctors have recommended.

My primary doctor prescribed Reclast. On the way home after the infusion, I developed a bad headache and nausea. For the next 45 days, I had Covidlike symptoms and couldn't clean my house. My primary doctor and an endocrinologist both insisted that I soon would feel better. They wouldn't prescribe anything as they said drugs might cause allergies that would complicate symptoms. I contacted the FDA and filled out a questionnaire. No reply was forthcoming. I journaled my symptoms and called my doctors. They both said, "You'll soon be better. You are not dying." Now I'm afraid to try another drug that my doctors have recommended.

Hi - I had Reclast over a year ago and have had pain and fatigue ever since, as well as occasional dizziness. My symptoms are being treated as fibromyalgia, as all neurological and rheumatologic tests came back negative. I’ve tried steroids and gabapentin for the pain and am now on Lyrica. Life as I knew it is over, unfortunately, as I’ve gone from being physically active and working to having to stop work and just managing pain and fatigue. I’ve done a round of TMS, which helped somewhat, and am about to try acupuncture.

My primary doctor prescribed Reclast. On the way home after the infusion, I developed a bad headache and nausea. For the next 45 days, I had Covidlike symptoms and couldn't clean my house. My primary doctor and an endocrinologist both insisted that I soon would feel better. They wouldn't prescribe anything as they said drugs might cause allergies that would complicate symptoms. I contacted the FDA and filled out a questionnaire. No reply was forthcoming. I journaled my symptoms and called my doctors. They both said, "You'll soon be better. You are not dying." Now I'm afraid to try another drug that my doctors have recommended.

10 months out and I still have side effects from the Reclast and have declined any further treatment and they called me Friday and want me to go next Wednesday for a consultation! I’m still declining further infusion! This pain sucks