Stubborness & Resistance to Help
My husband has always been a stubborn man. With Alzheimer's, he's gotten worse even though he knows he should be doing some things for his own good. For example, his memory is bad enough that he can't remember his address or my phone number--bad news if he should fall, get lost, or confused even more. I bought him an ID bracelet that, ideally, he should wear 24/7. But he doesn't want to wear it at night or in the shower. OK, but he supposedly has agreed to wear it at all other times. Once again this morning, he went out to walk the dog, was gone for a half hour, and came home not wearing it. Not surprisingly, I was exasperated and said he had promised to wear it. He began making excuses, so I raised my voice and got angry. Then, per usual, he said I didn't have any right to get angry and basically put the blame back on my shoulders because I wasn't his boss. He'll probably come to me later today and apologize and say he'll try to wear the ID bracelet. But I'm sure it will happen again because, basically, he doesn't want to. This is the same type of behavior that occurs with some other activities. Should I just give up, even though this is a safety issue?
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ret2tus, he may have forgotten.
Yes, give up.
Buy a smart tracer for his shoe insoles and one for the dog collar.
Though I sometimes consider that arguments are at least a form of engagement, it isn't the best form.
Reconsider expectations of this person that you love.
Someday he'll be gone and you'll remember acutely all your expressions of disappointment. You'll long for the days when he was just there and regret every expression of exasperation.
Bless your struggle.
It can be so frustrating when loved ones with dementia won’t cooperate for their own good. Despite it seeming they know better and could comply…..they often can’t. Sometimes they might, but cognition varies by the hour. So, reminding, cautioning, chiding…..really doesn’t help. I ask my mom why she keeps doing it with my dad….she can’t answer…..she just gets frustrated. Still….it won’t help.
Figuring out a way to work around it is daunting. I get it. For safety issues…sometimes there comes a time that the person cannot continue to do things alone….though they disagree. They may need supervision at all times. Tracking devices are great, it’s just that a person with poor memory may also lack judgment and may also struggle with more than making it back home. They might also struggle with navigating traffic, speaking with strangers, poor balance, etc.
My husband is also very stubborn before and after his Alzheimer's diagnosis.
I have two apps on our phones: Life 360 and Find My Phone. I try to make sure he always has his phone in his pocket, and I always have mine on me. When he starts to go outside in a happy voice, I say, "Do you have your phone in case you want to call me?" Then I can always check the Apps to see where he is.
I bought my husband an air tag necklace. He wears it all the time. I also tell him to take his poke but he is losing his ability to use it and lately he has lo it. I also use Find My for his phone, his wallet etc. E does not drive anymore but does go out and walk.
Also I agree the arguing. Goes nowhere but occasionally I’ve cried and yelled and it is like a lightbulb went off and has led to cuddling and a good discussion.
Can’t put this disease in a box. Hugs to you. This is hard
@ret2tus
Does he take it off because he is embarrassed to wear it or in denial of his diagnosis or both?
Alzheimer’s and stubbornness is a terrible combination. My mother in law had this combination (had early onset) before she passed. It was really hard to deal with (she wouldn’t take her medication and would hide it in the couch, wandered and got lost, would forget to turn things off like the stove, said she didn’t have Alzheimer’s and was 24 years old when she was over 80). It is very stressful for caregivers so I feel for you. I have to deal with this with my teen son’s father (60) who is my ex but he has no one in his life that will be there to help him and my son is too young to deal with it.
Have you thought of somehow putting/hiding things in your husband’s clothing, jackets, shoes, hats, wallet, dog leash, etc. that has information if he gets lost/found (tag with phone number/name/address)? An Apple Air Tag on key chain or in shoes/pockets?
I have an appointment with our lawyer to go over our documents and make sure everything is as it should be. I want to remove my husband from being my POA and I understand I don't have to tell him about that. It's entirely up to me. I don't like to be duplicitous, but I'm planning to visit the lawyer without telling my husband. Is this fair? He hasn't accepted that he has Alzheimer's and thinks he's just the way he's always been. He isn't, though he can still do lots of things. I'm also going to get a financial advisor, again without telling him. I feel bad about this but I don't know what else to do. Thoughts?
Protecting your legal and financial interests is the right thing to do. I’d ensure you have a lawyer on board and your appointed POA is aware of the situation and comfortable acting in that role if your husband contests it. I’d get advice from your lawyer about how to destroy the old documents so your husband won’t try to use them.
I absolutely feel your pain. My husband’s memory loss/Altzheimers is so bad he cannot remember from 5 minutes ago. He, too, is stubborn - so much so he denies there’s anything wrong with him!
I pray constantly for patience. So far, not much has been forthcoming. I get so angry that all this has happened to topple our world….i just can’t tell you.
I also have health challenges, which also stresses me to the max.
Everyone keeps “cheering me up” (sarcasm) by reminding me he’ll gonna get worse. At times, I just want to get on a Greyhound and head to parts unknown. I know I sound selfish and heartless, but I’m not seeing a light at the end of my tunnel.
I won’t stop praying and I urge you to do the same. Between the two of us, the Lord will surely hear us!
God bless you and all us (reluctant) caretakers!
You feel bad, but he would feel worse if you told him. Bless you for taking the weight. There isn't a choice about making the change.
My daughter suggested this when she was visiting, but she has an iPhone and my husband and I have Samsung Galaxies (and his is an older model that he doesn't want to upgrade). Is there an Android app that would work in a similar fashion for our phones?