Sinking ship

Posted by janiemae @janiemae, Apr 3 10:13am

I feel like my ship is sinking! I can’t do anything right. Everything I cook for my husband, he takes one bite and in the garbage it goes. Yesterday he wanted hashbrowns and two fried eggs…one bite and in the garbage. Mac and cheese in the garbage. Peaches in the garbage. I don’t say anything, but on to the next meal I stand at the stove wondering why I’m wasting my time. This morning I made him a little pancake and he requested pineapple….in the garbage.

Yesterday he was snappy at me. I walked away and tears rolled down my face. Normally, he would apologize. No apology.

Between him and other life stressors I’m gonna bounce off the walls. I was talked to about self care….hmmmm what exactly is that?

He says, what are we gonna do today and I say, “I don’t know”….he usually sits, watches TV, goes to sleep, same pattern different day.

He’s either freezing or too hot! Me….what day is it? We started this journey December 13, 2024. Some times I seriously don’t know what day or month it is….the other day I was thinking of Valentine’s Day and laughed to myself …. Christmas….everything is a fog…

Sorry, but I gotta let it out some people I’m sure have gone thru the same thing!

My phone rings constantly….How’s Ron doing? Then I realize that I didn’t even comb my hair today…..am I going crazy? 🤪

Interested in more discussions like this? Go to the Caregivers Support Group.

Might this be an appropriate case for medical marijuana? Along with being an appetite stimulant, it might also improve his mood. One trick I heard for reducing the metallic taste somewhat was to use plastic utensils instead of metal silverware.

My "hats off" and sincere thanks to all our caregivers.

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@markymarkfl

Might this be an appropriate case for medical marijuana? Along with being an appetite stimulant, it might also improve his mood. One trick I heard for reducing the metallic taste somewhat was to use plastic utensils instead of metal silverware.

My "hats off" and sincere thanks to all our caregivers.

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Yes, everything tasted like metal to me and I read about using plastic utensils. I am currently on chemo and the plastic utensils help a lot. Many food items still taste strange but I notice many of them taste better than before.

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@sillyblone

No your not. You sound like you care and want the best for him. I don't know who I am going to wake up to everyday. I see this man as my husband ..but someone else is saying mean and horrible things. Today was awful. I am right there with you. Many hugs your way.

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We have been married for 25 years and been together 29 years. He’s never called me a cuss word. The other day he told me to quit bitc—— and to shut the F up. Lord have mercy! Where is that man I married? The other night he found another tumor. He called Mayo and cancelled his surgery which was scheduled for the 18th, and all of his appointments. Now he will see his primary care physician tomorrow for pain management.

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Hello. I am so sorry
Believe me when I say, I have heard many curse words, belittling and horrible behavior. It is so hard whenever they change. I have been married 52 year's and dated for 3 1/2. It astounds me what comes out of his mouth. When he saw a rug he called it a sheet. That was weird because he usually knows what things or objects are. He said it once more! I thought to myself maybe I should call it like he did and see what his reaction would be. I thought that's not a good idea because I would be treating him like a child. His behavior is odd and sometimes horrible. 🫂

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Hi,
I'm so sorry you are going through this. My husband had lung cancer and had the same problem with food. He really wanted to eat but then he just couldn't. It can be the effect of radiation or any strong medicine your husband is getting. It's an awful situation for them.

The anger comes from fear that something is not right with their body and they can't do anything about it.

The best thing you can do is tell your husband how much you love him often and pray together to God for help and you will get the help you need. Pray everyday and just put everything in God's hands including your own well being. Then just have faith and wait for the answers. I'll say a prayer for the both of you also.

I wish you both the best.
PML

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@kc789

I understand quite a bit of what is being said here. My daughter has ovarian cancer and has been fighting it for years now. It's a rare kind and has come back. She lives with us. She is often angry and not very nice to me and her Dad. I realize it's how she feels and all, but it gets tiresome. I fix food I think she'll want and that would be good for her and mostly, she won't eat it. I feel helpless.

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I am currently on chemo and I am trying to figure out my food problems. I get very worried about what I will/can eat. For me, I will want something that I used to love, like a salad. But I suddenly find that some of the ingredients taste horrible to me, especially the spinach and cheese. But in my mind I remember how I used to love them. I kept trying to eat them but every time they ended up in the trash. So I don't eat them anymore. My mind had to catch up and accept that now I don't like this food. It makes me mad that I can't look forward to them anymore.
Sometimes I get cravings for food that I used to love but when I try to eat the food.... I get repulsed.
So I started a food dairy (list ) of food that I crave. When I eat it I mark down if I liked it. Of course some days I will eat something in my food diary and find that now I don't like it 😔!!!!!
I rarely ate sweets but now they taste great to me! 🍪 So I keep some around.
All these lists of food have helped me to figure out better what I MIGHT like. (I love fish) If something tastes bad after 5 times I stop trying to eat it.
I was losing a lot of weight but now I am holding steady.
Some of the food on my list tastes so-so but I can tolerate it so at least I can eat something.
PS, using plastic utensils helps a lot. I got that tip from this site.
I want to eat but it's complicated.
Keep trying 🍲🥨🥦🌮
I order take out and write down what I liked. I love shrimp lomain and order from the same place so it's consistent in taste. And I love Whoppers from Burger King. I did not eat fast food before.
Good luck.

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Food diary not dairy. A food list.

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My husband was suppose to have surgery today to remove the cancerous bicep, but he found another tumor. He started Hospice last Friday. This whole week has been a whirlwind with Hospice workers coming and going and the phone ringing off the hook. I’m exhausted from not sleeping, wondering if I’m going to wake up to a deceased husband. I want my life back! Yesterday he had a really rough day, where it was hard to make sense out of what he was saying. He’s a little better today, but snapping at me. I don’t recognize this man looking back at me half the time.

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It is a tough journey at times. You are allowed to take breaks for yourself. You are an angel to him although he does not realize it all the time.

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