SOJGREN'S, SMALL FIBER NEUROPOTHY

Posted by penn @penn, Mar 7 2:45pm

WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND HAD TO HELP ME????? IT BECAME SO BAD THAT THE NURSES HAD TO HELP ME TO THE BATHROOM, HELPED ME SIT DOWN??? IT WAS VERY BAD! NURSES SUGGEST I NEED TO SEE MY RHEUMATOLOGIST AS SOON AS POSSIBLE, THEY SUGGESTED IT WAS THE SOJGREN'S SYNDROME. WILL SEE DR. IN A FEW DAYS FROM NOW! ANYONE EVER HAD THE SAMY SYMPTOMS??

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jeburns22 | @jeburns22 | Apr 12 11:42am

In reply to @penn "I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning..." + (show)

Is there a lab test for Sjogrens? How do they diagnose it?

penn | @penn | Apr 12 12:06pm

In reply to @penn "I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning..." + (show)

@carlybull1
No I'm not doing well, nothing stopps the pain!
My husband is so good to me and I feel so bad for him. My Dr. Gave me Nortriptyline! Side effects, memory is not good and I can't remember where everything goes!! I'm stopping that medication tomorrow. Didn't do anything anyway. I'm a very social person, this life is getting to me! My pets help!!! We have 2 Bengal cats and looking for a dog, 😁 Hope your feeling better by the time you receive this!

penn | @penn | Apr 12 3:05pm

In reply to @jeburns22 "Is there a lab test for Sjogrens? How do they diagnose it?" + (show)

THEIR IS BUT YOU NEED TO HAVE UNCONTROLLABLE NERVE PAIN!!!

penn | @penn | Apr 12 3:49pm

In reply to @penn "I have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and..." + (show)

I'm sorry I can not help because I'm trying to find help for SEVERE NEUROPOTHY PAIN!!! I ALWAYS HAVE BURNING IN MY BODY!! NOTHING TAKES IT AWAY. MY DR. PUT ME ON, NORTRIPTYLINE. WORST A DRCAN ORDER. SPOKE WITH MY PHARMACYST ABOUT NORTRIPTYLINE, GABE ME HORRIBLE MEMORY LOSS, I'M SERIOUS, THAT WAS ONE OF THE SIDE EFFECTS!!!! SHE TOLD ME THAT WAS ONE OF THEM!!! I'M IN BAD SHAPE!!! IT DID "NOTHING" ELSE!!! FROM SPINE TO ENTIRE KEGS BURNS!!

penn | @penn | Apr 12 5:00pm

In reply to @penn "I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning..." + (show)

THERE IS NO CURE FOR IT AND FOR THE SEVERE CONSTAPATION ADDS TO THE PAIN! GOING OUT IS ALWAYS IN QUESTION!!! I MUST MAKE MY HUSBAND HAPPY, I TRY VERY HARD! HE IS WONDERFUL TO ME!

penn | @penn | Apr 12 5:09pm

In reply to @jeburns22 "Is there a lab test for Sjogrens? How do they diagnose it?" + (show)

I have so many tests I don't remember.
Caution, Nortriptyline causes memory loss, I took and don't even remember what I feed my cats, it's a list of things. I called my Pharmacist she said that she warns her patients about it but ignored it I guess, I forgot!! It didn't help any way and I'm worse. Have to wait until it gets out of my system!!!

penn | @penn | Apr 12 8:25pm

In reply to @carlybull1 "All of my Dr's tell me all of my symptoms sound like Sjogren's. ANA always comes..." + (show)

I would check it out further. Sometimes we have to do our own investigations. A Neuologist gave me, Nortriptyline, I should have read the side effects first!!! Causes memory loss, severe constipation!!!!!!! Thyroid, I had Thyroidectomy drug should not given!! My Neuologist mest me up! Pain is so from constipation. I learned a good lesson! Look up drug BEFORE TAKING!!!

penn | @penn | Apr 12 8:26pm

In reply to @penn "I would check it out further. Sometimes we have to do our own investigations. A Neuologist..." + (show)

I HAVE SOJGRENS ALSO.

penn | @penn | Apr 12 8:34pm

In reply to @penn "I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning..." + (show)

ANA, YES!! PAIN!!!

penn | @penn | Apr 12 8:48pm

In reply to @artemis1886 "I have Sjogrens, SFN, Hashmotos, Ehlners Danlos, connective tissue disease, lupus, severe axonal sensorimotor peripheral polyneuropathy,..." + (show)

I HOPE THERE IS SOME WAY YOU CAN BE HELPED!!!
I HAVE, SOJGRENS, SM.FIBER NEUROPOTHY, PAIN, OTHER THINGS, NO ONE ON MY MOTHERS SIDE HAS IT, MY FATHER'S ???

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