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SOJGREN'S, SMALL FIBER NEUROPOTHY
WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND HAD TO HELP ME????? IT BECAME SO BAD THAT THE NURSES HAD TO HELP ME TO THE BATHROOM, HELPED ME SIT DOWN??? IT WAS VERY BAD! NURSES SUGGEST I NEED TO SEE MY RHEUMATOLOGIST AS SOON AS POSSIBLE, THEY SUGGESTED IT WAS THE SOJGREN'S SYNDROME. WILL SEE DR. IN A FEW DAYS FROM NOW! ANYONE EVER HAD THE SAMY SYMPTOMS??
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My Neurologist gave me NORTRIPTYLINE FOR S.FN. did NOTHING except did something to my memory. I called the drug company. They will call Dr. I called him twice, no return call!! NEUROPOTHY PAIN IS BECOMING UNBARABLE. CAN SOMEONE SHARE THE NAMES OF THE MEDICATION THAT IS HELP YOU FOR S.F.N. HURTS SO BAD!
I have never been tested but It's obvious I have it. I HAVE DRS APPT THAT I HAVE TO CANCEL BECAUSE I CAN NOT SIT IN THE CAR!! HAVE TO FIND A NEW NEUROLOGIST NOW!
Hello, I'm infused every 3 was for a few years now. IVIG HELPS SOME WHAT BUT HARD TO SIT IN A CAR. BACK. SPINE, SMALL FIBER NEUROPOTHY NOTHING I REALLY KNOW OF GETS ME IN A CAR AND SIT WITHOUT PAIN???
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1 ReactionSounds like you are having the sensory pain that many people havr. For some reason, I was spared that. (But made it hard to diagnose,) I am told by other sufferers that CBD gummies help with the pain. They do not get you high. You would get them at a CBD dispensary. They are for pain. Good luck and best wishes.
I am allergic is to morphine I turn purple quit breathing. Hydrocodone I hallucinate on scared my family I started yelling.
I can take Demerol but doctors don’t like to give it then OxyContin.
MAKES ABSOUTLY NO SENCE!
Drug that makes Nortriptyline called me. YES, MEMORY LOSS, YES CONSTPATION! They said my memory should return I ASKED "WHEN"!!! NEUROLOGIST NEVER RETURNED CALL!!! BOWELS, NO! WHAT DO I DO NOW? DEPRESSED!!! LUCK, HAVE A GREAT HUSBAND! CALLING A RHUMATOLAGIST TOMORROW!!!
Thank You so much! I'll try it!
I was replying to a posting where someone said they were on morphine and asked if I had tried it. I was replying to that post I don’t know how it ended up on this page. I hit reply. This has happened several times to me sorry.
My sensorymotor neuropathy was confirmed by an EMG/nct.
(Nerve conduction test.)
Dr Anne Oaklander is a research neurologist out of Boston. She practices in two other states. One of her lecturers are below on YouTube.
Just an fyi Small fiber neuropathy ( confirmed by biopsies in your leg).
https://www.medicalnewstoday.com/articles/small-fiber-neuropathy#:~:text=Small%20fiber%20neuropathy%20is%20a,and%20certain%20types%20of%20pain.
I was diagnosed with severe axonal sensorimotor peripheral polyneuropathy, SFN, dysautonomia and cardiac autonomic neuropathy. The cardiac autonomic neuropathy (CAN) bothers me the worst. My blood pressure going up and down along with my pulse rate going into bradycardia and tachycardia. When I go into bradycardia it triggers my seizures. So now I started having seizures in my sleep. The neurologist does not tell you neuropathy can cause seizures until they start happening to you and you have no idea what’s going on along with the paralysis. The doctors (cardiologist and electrophsiologist) tried me on medication for the arrhythmias but it did not work. Once the neuropathy moves into your heart you are given eight years to live. I have really bad dizziness and balance problems with the arrhythmias.
I have tested positive for Sjogrens, Lupus and connective tissue disease but never had the problems you are describing. Sjogrens causes dry eyes and dry mouth are the main symptoms.
https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216
Here is info on sensorimotor polyneuropathy
https://medlineplus.gov/ency/article/000750.htm
I do have problems lifting my legs to get into and out of the car. I can no longer drive. I have had four hip replacements and actebulum fracture with an ORIF along with a right hip replacement. My son or husband lifts up my legs and puts them in the car.. I sometimes have problems getting into and out of my bed. I have a sleep number bed that I can raise the head or legs. It hurts my body when I sleep in a bed with coils. I can feel the metal coils. On my bad days I use a wheelchair to get to the doctors office my son or husband pushes me. If I leave the wheelchair at home my son goes to the doctors office and borrows theirs. I have been told this is caused by the motor neuropathy and SFN.