Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Posted by penn @penn, Mar 7 2:45pm

WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND HAD TO HELP ME????? IT BECAME SO BAD THAT THE NURSES HAD TO HELP ME TO THE BATHROOM, HELPED ME SIT DOWN??? IT WAS VERY BAD! NURSES SUGGEST I NEED TO SEE MY RHEUMATOLOGIST AS SOON AS POSSIBLE, THEY SUGGESTED IT WAS THE SOJGREN'S SYNDROME. WILL SEE DR. IN A FEW DAYS FROM NOW! ANYONE EVER HAD THE SAMY SYMPTOMS??

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penn | @penn | Apr 24 9:08pm

In reply to @sbtheplumber1 "@penn have you tried Ollie pop for your bowels it’s a prebiotic most flavors aren’t bad?" + (show)

Olive Pop. What is it? Where to buy, DRUG STORE?
THANK YOU!

penn | @penn | Apr 24 9:08pm

In reply to @penn "Olive Pop. What is it? Where to buy, DRUG STORE? THANK YOU!" + (show)

Ollie Pop

sbtheplumber1 | @sbtheplumber1 | Apr 24 11:08pm

In reply to @penn "Olive Pop. What is it? Where to buy, DRUG STORE? THANK YOU!" + (show)

It’s called Olipop I get it at Walmart it’s sold at Target , Kroger and probably more stores it’s located by the salads! Lemon lime, Dr Goodwin, Rootbeer, Banana are good. I love strawberry but I’m not a fan of the Strawberry Vanilla. There’s more flavors I haven’t tried

rllh5403 | @rllh5403 | Apr 27 4:22pm

In reply to @penn "Issue, can't move bowels no matter what Ii take?????" + (show)

I have PMR. I use essential oils to get my bowels to move; I use ginger essential oil

jmee82 | @jmee82 | 1 day ago

In reply to @penn "I have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and..." + (show)

@penn did any doc note your tailbone pain was due to snf or sjojren? Mine keep saying it is unrelated

Mariette R. | @marietter | 19 hours ago

In reply to @rllh5403 "I have PMR. I use essential oils to get my bowels to move; I use ginger..." + (show)

@rllh5403
I used to use Citrucel orange flavored which tastes like Tang when I was on gabapentin for neuropathy side effect constipation.
Since I’m off that drug, I use inner leaf aloe Vera juice with a bit of natural lemon in it. From Vitacost.com
It’s natural and works great! I keep it refrigerated .