Leqembi: Anyone else taking this infusion to slow dementia?

❤️

When I was diagnosed with dementia they pushed for me to have those infusions.
I turned it down because it didn’t cure dementia. If the drug companies came up with a drug that cures, I would be first on line.
My neurologists haven’t been able to give an exact diagnosis yet. My feelings have changed about needing to know what form of dementia I have.
None of them is curable, so why does it matter?

I’ll just eat my ice cream, and not worry about it anymore.

I am sorry to hear that you wife had such a reaction to Leqembi. It must have been a relief after the MRI showed all was well with taking the drug. I am not sure how I would feel if he had to discontinue his treatment. It has definitely given us some hope, even if it is just a glimmer... My husband is having his 4th infusion this coming week and is scheduled for an MRI after that treatment. It is standard procedure to check for brain bleeds as you know. I have noticed that for about a week after the hour-long infusion he seems more himself. I am not sure if this is what others are experiencing? Have you noticed any changes in your spouse?
Thank you for the info you posted, it might help someone else.

Hello, I am devouring all your communication, as I am at the crossroads of deciding which of the two drugs I should sign up for. I am 68 and have been diagnosed with MCI. I have one APOE3 gene and one APOE4 🙁 I have read about the side effects and have concerns; I have a part time job which I love and I don't want to give it up yet. The job is having me lean toward Kisunla, as the infusions are every 4 weeks, where the Leqembi is every 2 weeks. The side effects are an important consideration. I have also read the research, and it seems Kisunla is more effective, though side effects are greater.

My husband has received 32 Leqembi infusions. When he was diagnosed and fought the battle of being accepted as a good candidate to receive the drug and then finding a local Dr to oversee the administration of it, kisunla was not an option. He also has one APOE 3 and one APOE 4. His first infusion was the worst as he had a lot of side effects. We have since learned how to manage the drug and now he might get colder the normal the evening after his infusion and usually a little tired that evening and the next day. We are happy with the decision that we made to seek out treatment, we feel we are helping to fight this awful disease. Best of luck to you 🙏

My husband has had 4 kisunla infusions, no side effects ever. He is due for one in 3 days and I think he is acting more confused than normal. It is so hard to tell if there is any improvement but I hope that now I notice he’s more confused I will pay attention to after infusion. He doesn’t have a pet scan until July when we will see if there is any improvement in the plaques. Crossing fingers . It’s a tough road but I’d rather be doing n something than nothing.

Put my reply to this note on the wrong one. See the reply to the one below. Maybe i need infusions. Trying to keep my sense of humor