Leqembi: Anyone else taking this infusion to slow dementia?

Posted by badlandsgirl @badlandsgirl, Mar 11 3:56pm

Hello - My husband was diagnosed with Alzheimers Disease in June of 2023. The doctors at Mayo determined that he would be a good candidate for the Leqembi infusions. He received his 5th infusion today. We are hoping to chat with other folks receiving the infusion to share experiences.
Prayers to everyone dealing with this awful disease.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

stephanie1212 | @stephanie1212 | Aug 13 7:40am

My husband had several treatments of Lequembi. He had a fall and hit his head and the MRI showed us slight brain bleed, which may have been from the fall or from the infusion. The doctor decided to stop the infusion because of the brain bleed. It has been a few months and I’m hoping that he’ll be eligible for the new INFUSion that recently was approved by the FDA.

allit | @allit | Oct 11 10:42am

My wife started the infusions last Friday. Thankfully she didn't have any infusion reactions. She's 64 and was diagnosed in January 2024 with MCI with Alzheimer's pathology. We're just hoping for the best. We're in a support group for Younger Onset Alzheimer's and a few people in the group are getting the infusion. They are going to have a separate group that meets once a month starting in November through April just for people who are getting Leqembi or who qualify for Leqembi but haven't started yet. We're looking forward to attending those to find out more about what we can expect.

badlandsgirl | @badlandsgirl | Oct 11 11:22pm

We certainly have wish you a the best.

mentonette | @mentonette | Oct 12 8:39am

Have you noticed any positive improvements since taking Leqembi?

skk15 | @skk15 | Oct 12 11:43am

Which department is the physician in? We have not encountered a doctor who expressed interest in any treatments.

badlandsgirl | @badlandsgirl | Oct 12 12:25pm

In reply to @mentonette "Have you noticed any positive improvements since taking Leqembi?" + (show)

Leqembi is meant to slow down the progression. I'm not sure how you would know if it is slowing it down or not.

badlandsgirl | @badlandsgirl | Oct 12 12:26pm

In reply to @skk15 "Which department is the physician in? We have not encountered a doctor who expressed interest in..." + (show)

We had to advocate for ourselves for the treatment. It is a difficult journey.

Becky, Volunteer Mentor | @becsbuddy | Oct 13 9:30pm

In reply to @allit "My wife started the infusions last Friday. Thankfully she didn't have any infusion reactions. She's 64..." + (show)

@allit Welcome to Mayo Clinic Connect! We’re glad you found the site and that you felt comfortable enough to join the discussion. The members in this care group are very friendly and really try to help each other. So, welcome!

crankyyankee | @crankyyankee | Oct 14 10:17am

In reply to @skk15 "Which department is the physician in? We have not encountered a doctor who expressed interest in..." + (show)

From my experience, it should be a neurologist. My husband's neurologist said he is being very cautious about prescribing - only a couple of patients in his very large practice.

davejr | @davejr | Oct 14 11:47pm

I am in Stage 3 Alzheimer's and, personally, I have been prescribed around 55 drugs that caused me to have adverse reactions. You won't get me to try this just to get 5 more months. I'll admit I have a major problem with meds. but I think Leqembi is still very early in its investigative stage. Don't forget that drug companies are in this for a profit. Wait until a good independent randomized and masked trial tells you how effective and safe any proposed drug is unless you are feeling desperate and are willing to face possible consequences. My opinion....