Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Hi I also have severe raynods. It’s awful having to keep my toes moist all the time and warm. I live in Ohio it hasn’t got warm enough here yet to see if it will ease up in summer. By Dr is not sure if it will or not. I was diagnosed in January with it. I had a toe ulcer that took 6 weeks to heal. I find using hydrocolliod bandages work well to prevent toe ulcers. Has you’re ever had a toe ulcer?

@sphillips1952. Have you told your doctor about your frequent bruising and black n blue feet. I’m asking because I went to my doctor this morning because my legs were puffy and red. She sent me off to get an ultrasound of my legs to make sure no clots were forming. Just what I don’t need! And my kidneys and heart are working fine!
What did your doctor day about the bruising and black n blue feet?

Thanks for the 🤗🤗. Right back at you!!

I'm 70 and have had it (raynauds) for long time too. if u can tolerate a med that lowers ur BP, a calcium channel blockers like my new PCP gave me may help u too. was already on Lisinopril for BP, so he just changed my BP med to ccb. has "desired side effect" of helping with raynauds! mine had gotten really bad, and this been life changer! can make it 2 car in super cold weather , etc ice tray outta freezer, etc, without attack!!!

Hi there is that the only med you are on for raynods. I have severe raynods they changed my blood pressure med also I’m also on generic viagra 5 mg 3 times a day and not working too well any suggestions? Would appreciate it thanks

gosh, im sorry! were gonna put me on viagra if bp change didnt help... as i understand it, only the calcium channel blockers 4 bp help raynauds. im on amlodipine. u on calcium channel blockers??? if so, have u asked doc what else might help? I know bad raynauds is miserable-feel 4 ya

Thanks for reply I’m on 10 mg of amlodipine. Really not helping. I asked what else can I do and she said maybe cumadin. I don’t line the sounds of that

geez-im sorry. we're all snowflakes-what helps one may not help the other. if u decide 2 try Cumadin, I sure hope it helps. maybe research some urself 2 see if other options?? I pray. I'll pray 4 u

they were also gonna try me on Prozac, as it can help raynauds. and I also suffer from anxiety disorder which can make it worse. I take Buspar 4 that. fish oil supposed 2 help-take that as well. there's also Botox injections into the nerves that cause the constrictions some r doing. i've also found visualizations 2 b helpful. I picture my blood vessels as huge flowing rivers of nice hot blood, with the blood flowing like crazy. sounds la la land 2 some, but visualizations can actually help some. wouldn't hurt 2 try it. or some visualization that u think of instead of my "rivers of blood." good luck

Much thanks for you prayers. Im doing lots of research on it. They say Botox would open blood vessels. I’m going to ask my dr.