Changes after Transplant

@gaylea1 I know that ondansetron was one of the nausea drugs I had, I'm not sure if that was the one that totally knocked me out or not. When I say it knocked me out, I really mean it. I was almost incoherent for more than a day. I took it once and hated it and then the next time I had nausea my husband pushed me to take it, saying that was why they prescribed it for me, so I did take it. I regretted giving in to that. My husband was really wonderful through most of this but sometimes he got a little overbearing, a tendency he has.
JK

@contentandwell...strange how medications react differently person to person. The Ondansteron did nothing at all to me. No reaction whatsoever.

Hi @kellysmith1215 and welcome to Mayo Clinic Connect. We're glad to have you here. @keggebraaten and I maintain the transplant blog on Connect, last year we interviewed a pharmacist and social worker from our transplant center on the topic of transplant medications. I'm sharing that post with you here as it might provide some helpful tips on how to save money on your post transplant meds. What other questions do you have? https://connect.mayoclinic.org/newsfeed-post/how-to-save-money-on-your-medications/

@gaylea1 I do not generally have bad reactions to any medicine but when my liver was so compromised I did, I had many stomach problems from drugs.
the ondansetron was prescribed not long before my transplant and by that time my liver was worse than anyone realized, that was discovered when they dissected it.
JK

Thank you for the insight.

Thank you & I'm not sure why the coordinator is saying i have to raise so much money than. I believe she said 1 yr after the transplant you loose all your benefits , SS & Medicare. I need to call Medicare today & find out the truth from them.
Thanks everyone

If your under 65 check into Florida Blue OPTIONS plan. I'm a Mayo patient up in Jacksonville. There are different Option plans. I'm not sure about Tampa General. I worked backwards. I dealt with the insurance person for transplants at Mayo then contacted Florida Blue. Insurance controls where I live because a lot of individual health policies do not include Mayo.

@kellysmith1215, Hi Kelly, I think that you are absolutely doing the best thing by taking matters in your own hands and contacting Medicare yourself about your own situation. I hope that you can get to speak to a real person within a reasonable amount of time. I suggest that you also get the name of the person you speak with and any reference numbers in case you need them for future reference.
Are you on dialysis, or will you be on dialysis? That, too, is something to discuss with Medicare when you call them.

I congratulate you on your proactive approach to your own care! I wish you the very best possible outcome.
There should be a social worker in your transplant dept who can also assist you when you get the information. I have learned that at different transplant centers that the role of the coordinator can be different.

Kelly if you ever want to address a particular person, you can use their @name just like I did at the beginning of this reply.
Keep in touch, and know that we are here for you.
Rosemary

Yes i have been on dialysis for almost a year now.. I do home hemodialysis. But yes I'm going to ask them every question i can think of.
The coordinator at Tampa General that I have in my opinion is terrible. She doesnt get back to you & she doesn't give good advise or any good help at all.
That's 1 reason I'm sticking with the Mayo Clinic in Florida..

Thank you ..