Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

Posted by mscluppy @mscluppy, Dec 23, 2024

My husband was recently diagnosed with Cholangiocarcinoma. We were referred to Mayo and have our first appointment in a week. What I don't understand is why blood tests taken the end of Sept were all normal range. Lesion was found on the liver by accident otherwise no symptoms. They say it's about 8cm which is quite large. We don't know what to expect and it's scaring me. I'm assuming the size would mean it's more advanced. Can anyone share their experience if it's similar?

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williamdaddono | @williamdaddono | Mar 1 11:43am

In reply to @mscluppy "Can I ask how big your tumor was? Thank you." + (show)

Mine was discovered during a routine lung screen. It was 12.5cm which is very large. It was cancer and i had a liver resection in May of 2024. I was told i was cancer free until December of 2024 when a new 2cm tumor developed. I underwent Y90 treatment and am in the process of trying to get listed for a liver transplant.

denise134 | @denise134 | Mar 26 10:18am

In reply to @williamdaddono "Mine was discovered during a routine lung screen. It was 12.5cm which is very large. It..." + (show)

I had over 5 cm tumor resection at liver transplant unit at Montefiore hospital in Pittsburgh Sept 2024. They do 3 transplants a week and the team was wonderful.
Hope the best for you.

denise134 | @denise134 | 6 days ago

In reply to @astemko "No we are from Pennsylvania either Thomas Jefferson or Sloan Kettering" + (show)

I just saw you were from PA and so am I near Pittsburgh and had my liver resection done at Montefiore hospital
If you don't mind why you would not consider Pittsburgh or do you not live closeby.

denvergirl | @denvergirl | 5 days ago

Denvergirl here...I too was diagnosed with cholangiocarcinoma. No symptoms . Found by accident and also normal blood tests.
I went to Mayo in Rochester, and my Purple Team was amazing. Very glad that you are at Mayo also. They are world leaders in this disease.
Best wishes to you.