Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

Posted by mscluppy @mscluppy, Dec 23, 2024

My husband was recently diagnosed with Cholangiocarcinoma. We were referred to Mayo and have our first appointment in a week. What I don't understand is why blood tests taken the end of Sept were all normal range. Lesion was found on the liver by accident otherwise no symptoms. They say it's about 8cm which is quite large. We don't know what to expect and it's scaring me. I'm assuming the size would mean it's more advanced. Can anyone share their experience if it's similar?

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williamdaddono | @williamdaddono | Feb 24 1:34pm

In reply to @mscluppy "Wow. My husbands tumor is 9cm and they won't even consider surgery until he has chemo...." + (show)

Only the Y90 treatment which uses radiation pellets

mscluppy | @mscluppy | Feb 24 2:15pm

In reply to @williamdaddono "Only the Y90 treatment which uses radiation pellets" + (show)

They mentioned the Y-90 but that is if the chemo treatments don't shrink it.

denvergirl | @denvergirl | Feb 25 10:37am

Denver girl here - My diagnosis was like yours - found by accident during an ultrasound of gall bladder.
I had successful surgery at Mayo Rochester. I highly recommend them and glad to see that you to are going to Mayo. And my liver function tests were also normal since it is not liver cancer.
I am now taking capecitabine as a prophilaxis for 48 weeks.
My best wishes to you.

mscluppy | @mscluppy | Feb 25 10:41am

In reply to @denvergirl "Denver girl here - My diagnosis was like yours - found by accident during an ultrasound..." + (show)

Can I ask how big your tumor was? Thank you.

denvergirl | @denvergirl | Feb 26 4:28pm

About 4 cm in size.

astemko | @astemko | Feb 27 9:24am

Did you have any lymph node involvement if you don’t mind me asking ?

thomas1949 | @thomas1949 | Feb 28 11:48am

In reply to @astemko "Did you have any lymph node involvement if you don’t mind me asking ?" + (show)

Up on my lings

thomas1949 | @thomas1949 | Feb 28 11:48am

Lung

astemko | @astemko | Mar 1 9:47am

In reply to @mscluppy "Can I ask how big your tumor was? Thank you." + (show)

Were lymph nodes involved?

denvergirl | @denvergirl | Mar 1 10:56am

In reply to @astemko "Did you have any lymph node involvement if you don’t mind me asking ?" + (show)

No, fortunately.

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