Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

Posted by mscluppy @mscluppy, Dec 23, 2024

My husband was recently diagnosed with Cholangiocarcinoma. We were referred to Mayo and have our first appointment in a week. What I don't understand is why blood tests taken the end of Sept were all normal range. Lesion was found on the liver by accident otherwise no symptoms. They say it's about 8cm which is quite large. We don't know what to expect and it's scaring me. I'm assuming the size would mean it's more advanced. Can anyone share their experience if it's similar?

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@mscluppy

Can I ask how big your tumor was? Thank you.

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Mine was discovered during a routine lung screen. It was 12.5cm which is very large. It was cancer and i had a liver resection in May of 2024. I was told i was cancer free until December of 2024 when a new 2cm tumor developed. I underwent Y90 treatment and am in the process of trying to get listed for a liver transplant.

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