Life while being treated

I have found that if i am not well hydrated, I cough at night. It's a bit of a delicate balance though. If I drink too much water after 7 pm, I don't cough all night, I pee!

i too, am on meds. Not able to do ethambucol because of eye issues. So i am on rifampin and arzithromycin, everyday, for the past year. The MAC make me extremely tired and SOB. No cough, no sputum. See the ID soon and going to ask that i be taken off the rifampin because of the side effects. After a year of tx, i feel no different. My PCP says my chest xrays will always look messy because of the MAC and my scans show no improvement. Dont know what to do now.

It’s good to see you’re still getting around and active but if it falls the path like mine did, I was like that for years I was fine. I didn’t feel the side effects at all from it and I didn’t do any kind of treatment but then one day about eight years ago, I was mowing the lawn and started feeling Fatigued and I progressively got worse from then now I’m taking the antibiotics been on them for about eight months and in the last year, it’s gotten a lot worse. I got to the point where I could barely walk. I couldn’t even walk through the store. Couldn’t walk up a flight of stairs without getting winded couldn’t work in my garden without getting winded so now I’ve taking it serious. The doctor says I’m down to use him 20% of my lungs and I’ve been on the antibiotics for eight months now I’m getting around a little better but I still don’t feel it’s gone. I can walk and get upstairs. I still can’t exercise though. I’ve cut out fast food cut out sugar changed my eating habits lost 75 pounds. I take supplements I drink Mullen tincture.

Hi Melb - I just joined this site, and don't see a way to message you directly. I've read some of your posts/comments, and just here to say that our stories sound somewhat similar. I also developed a cavity in my lung (from a more rare NTM, xenopi), and the theory is that it was from long time inhaled steroid use (around 15 yrs). I've been off puffers for a year now and apparently I don't have asthma. Wondering how it's going for you and if you went off puffers or found another way to manage asthma? I'm also on daily big 3 meds, and don't have bronchiectasis so am not doing any airways clearance currently. Just nice to see someone else in a similar boat (sadly for both of us!)

Hi ashanne86 ,
Sorry for the delayed reply but i havent been on this site in a while. I hope you are doing well and managing the meds ok. I am still on the inhaled steroids. Im working with a pulmonologist and ID dr but not sure how else to keep my asthma controlled. I am about to hit 12 months of the big 3 meds and the dr is telling me i can stop them soon. It makes me nervous bc im scared that it will return.