Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@beverly48

Viperron, I think it is normal to have daily fear when you know you have no control of when the rupture might occur. I too think of the difficulty of surgery and the healing time since I am 77 years old. How old are you Viperron? I do believe in Quality of life over Quantity of life. However, I really haet the thought of my loved ones mourning my death so deeply when I am gone. I saw their trauma whe their Dad, Grandfather sudenly passed away at 63. The greatgrandsons never knew their great grandad but hear us talk about him. I am the only parent and grandparent left. I wish the FDA would approve the TEVAR graft for an ascending aortic aneurysm using the femoral insertion (closed surgery) method. Cardiothoracic surgeon and Pumonologist all agree that I am at very high risk of not making it through the AAA open heart surgery. God is so good and I do feel blessed to be aware that I have limited days on earth and that I must get my "ducks in a row" for the benefit of my loved ones. As to when the rupture takes place, I just pray that I don't suffer pain for long or that some HERO decides to try to save me and I end up in a wheelchair at best for the remainder of my life. Quality over Qantity. May God help us BOTH thru all of this.

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Thank you, Bev, I’m 81 and really appreciate your reply. We sound like two peas in a pod. I do not have much trust in the doctors today as for eight or nine years I was taking several supplements that produced nitro oxide, and they all knew it, but until I looked it up myself and find out that you never take nitro oxide supplements with an aneurysm as it weakens the elasticity in your aorta, my game plan is to ride it out. Do nothing and hope it’s quick.

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I'm almost 88, and had a 4.8 AAA discovered about 10 yrs ago. No symtoms. I'm fortunate to have good general health. They image it each year, and it has been stable. I do a brisk 1/2 mile walk most days. My parents both lived to 99 & 98, so I MAY be around for a while. It's helpful to read about other peoples experience with doctors, etc.

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@ddz

I'm almost 88, and had a 4.8 AAA discovered about 10 yrs ago. No symtoms. I'm fortunate to have good general health. They image it each year, and it has been stable. I do a brisk 1/2 mile walk most days. My parents both lived to 99 & 98, so I MAY be around for a while. It's helpful to read about other peoples experience with doctors, etc.

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I am 80 and had a AAA discovered on 2011 4.5. It has grown very little and is now 4.9. The doctor told me the new size for surgery for AAA is 6cm and likely mine won't get there unless I live to be over 100!!! So I am at ease that I don't have to see surgery in the future.

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I see a cardiothoracic surgeon at DUKE at Durham, NC. He came highly recommended by my PCP. He is known to be the AORTIC guru in the southeast. Personally, I like him very much as he is easy to talk with, is very thorough and always ask me if I have any questions, which I often do and we discuss those. On the day that I have an appoitment with him, my cardiac ultrasound is scheduled first, then I have my CT with contrast performed and then I see the cardiothoracic surgeon to review those test results. I really like the fact that the Cardiac CT photos are reported out in a 3-4 dimensional picture so that I can visualize the aneurysm and its size. I leave the office appointment with all the printed & diagram reports in hand for my reference and my test results are electronically transmitted to my PCP and local cardioloigst. G. Chad Huges, IV, MD is my Duke Cardiothoracic surgeon. I have not had surgery yet and I am 77 years old.

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@beverly48

I see a cardiothoracic surgeon at DUKE at Durham, NC. He came highly recommended by my PCP. He is known to be the AORTIC guru in the southeast. Personally, I like him very much as he is easy to talk with, is very thorough and always ask me if I have any questions, which I often do and we discuss those. On the day that I have an appoitment with him, my cardiac ultrasound is scheduled first, then I have my CT with contrast performed and then I see the cardiothoracic surgeon to review those test results. I really like the fact that the Cardiac CT photos are reported out in a 3-4 dimensional picture so that I can visualize the aneurysm and its size. I leave the office appointment with all the printed & diagram reports in hand for my reference and my test results are electronically transmitted to my PCP and local cardioloigst. G. Chad Huges, IV, MD is my Duke Cardiothoracic surgeon. I have not had surgery yet and I am 77 years old.

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Wow! I'm moving the Durham. That's great!!

I only see the surgeon if he thinks there's something to talk about (possible quick growth was the one time I saw him). O/W phone call from a PA and no pics.

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@beverly48

I see a cardiothoracic surgeon at DUKE at Durham, NC. He came highly recommended by my PCP. He is known to be the AORTIC guru in the southeast. Personally, I like him very much as he is easy to talk with, is very thorough and always ask me if I have any questions, which I often do and we discuss those. On the day that I have an appoitment with him, my cardiac ultrasound is scheduled first, then I have my CT with contrast performed and then I see the cardiothoracic surgeon to review those test results. I really like the fact that the Cardiac CT photos are reported out in a 3-4 dimensional picture so that I can visualize the aneurysm and its size. I leave the office appointment with all the printed & diagram reports in hand for my reference and my test results are electronically transmitted to my PCP and local cardioloigst. G. Chad Huges, IV, MD is my Duke Cardiothoracic surgeon. I have not had surgery yet and I am 77 years old.

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Thank you for this recommendation. I live close enough to Duke to go there and am pleased to have Dr. Huges's name. Very helpful information! I'm 79 with 4.2 and a CT scan scheduled for July. I can only hope the aneurysm hasn't grown. I'm glad you're confident about the treatment you're getting.

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All of this information is so valuable! I’m 67 with a 5 cm ascending aortic aneurysm and otherwise in great health. My aneurysm has been the same size for 5 years and would like more information on what people do when they don’t elect to have surgery. I’m a trained scientist and understand the risk comparisons with and without surgery but we are individuals of course and believe we all don’t fit into the same category of risk. I’m hesitant about surgery but appreciate the risk of not having it. What an agonizing situation. Peace and good health to everyone!

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Hello and thanks for this chat thing . Im just two days into my diagnosis
I'm meeting with surgeon on Monday for further directions.
Don't know much about why it happened or when or size .
I'm 58 healthy active ,guess that doesn't matter . I'm not scared of the surgery more not waking up tomorrow. Will update after Doc visit. Thanks again for this . I've read all post and it's been quite helpful.

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