Living with Neuropathy - Welcome to the group

Finally seeing improvement.watched video just now It had some new points for me. Thanks for fast reply and help. Glad I joined.

Thanks for replying. Yes,I’m taking pt cause of Dec fall. Just now seeing lots of improvement. You’ve encouraged me to dust off my exercise bike

The Mission Gait video was extremely helpful. Thank you.

Margaret Callaghan. I have neuropathy in my left leg and foot resulting from spine fusion surgery in 2016.
I have been getting stabbing sharp electric shock type pains in my foot and wondered if anyone else gets these. I have tried ice and heat which help a little. Please let me know of any remedies. Thank you

I was diagnosed with peripheral neuropathy in January 23 I went to Treatment at a chiropractic clinic that use blueprint supplements over the next six months my peripheral neuropathy was re-diagnosed as autonomic neuropathy. I was in pain I was prescribed gabapentin. I started at 900 mg two years later. I am up to 1500 mg supplemented by 100 mg of pregabalin every day. I lead a very healthy lifestyle and have been able to deal with the fact that there is no cure that I will live with this for the rest of my life. I’ve heard lots of people who write about not wanting to take medicine and keep searching for alternative means the way I look at it is I like to live my life every day and if the medications I take and enable me to do so without pain for the most part, there’s no reason why I shouldn’t take them. I’ve had many people offer me homeopathic remedies, but the fact of the matter is medication works, I function at a high level if I didn’t take the medication I am a blathering pool of pain unable to concentrate. I don’t mind I should actually say with the medication I function normally I mean plainly it’s a new normal, but I can go about my daily business that’s all I have to say today hello

Welcome @matt2374, You might find it helpful to scan through the different discussions related to electric shock type pain. Here's a search link that lists the discussions and comments - https://connect.mayoclinic.org/search/?search=electric+shocks+feet.

Since you mentioned the neuropathy was a result of spine fusion surgery, I'm wondering if Myofascial Release Therapy (MFR) might be an option. There is a discussion started by @jenniferhunter on MFR if you would like to learn more about MFR - https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/.

Hi,
As one who does not take medication for pain there can be more complex reasons than just not wanting to take medication. For myself anything but opioid medication causes more damage than it cures so I'm stuck with the likes of codine and have no wish to become addicted. Believe me if addiction wasn't an issue I'd be taking medication rather than sucking up the pain associated with Autonomic polyneuropathy. With ANS a rule of thumb is to do what ever it takes to manage the symptoms, as you said there is no cure but there is also no treatment know either, just playing with the symptoms is all that can be managed.
Cheers

Can anyone recommend a supplement or treatment method to help or alleviate idiopathic peripheral neuropathy?

Hello, @muhrich

I need to say at the top that what I am about to tell you is not an endorsement or recommendation but only a snapshot of my experience with one particular "medicinal food," or combo of supplements, called EB-N5. I urge you to ask your doctor, if you're so inclined, if he's heard of EB-N5 and has an opinion, or way or the other.

I see two neurologists. One I'll Dr. A. It was with Dr. A that I had a series of MRIs, each looking for a possible spinal deformity that may have been causing my balance problems. None of the MRIs revealed a thing. Months went by. With Dr. A's blessing, I went to see a physiatrist––the secod neurologist, whom I'll call D. B.––who administered an EMG and diagnosed my idiopathic large-fiber PN. That was in the summer of 2022. At first, Dr. B wasn't able to suggest any meds or supplements. More months went by. Then one day, Dr. B. phoned and offered to give me a prescription for EB-N5. Dr. B. made no promises, but said that EB-N5 was itself showing some promise in early testing. I began taking EB-N5 in the summer of 2023, and I'm still taking it. I still have my PN (poor balance, but no pain), but (confirmed by a second EMG only last fall) my PN has not progressed. Can I credit EB-N5? I don't know. I'm also keeping to a good diet and doing all I can to remain reasonably active. Neither Dr. B. nor Dr. A nor I is able to say my reasonably stable PN is due to my many months of taking EB-N5. Something, however, is helping me, for which I'm deeply grateful.

If you do ask your doctor about EB-N5, I'd welcoming knowng what he says.

Cheers!
Ray (@ray666)

Hi @muhrich, I would like to add my welcome to Connect along with Ray @ray666 and others. Just thought I would chime in and mention that the Foundation for Peripheral Neuropathy has a list of supplements that have been shown to help with neuropathy symptoms in their complementary and alternative therapies document here - https://www.foundationforpn.org/wp-content/uploads/2024/11/Complementary-and-Alternative-Treatments.pdf.