Neuropathy?

Posted by somanyquestions @somanyquestions, Mar 19, 2025

My feet feel like they have socks on, I don’t; my genitals feel prickly, burn; I am a little incontinent; my scalp itches always, I have very low vitamin B (had B-12 injection, taking sublingual oral pill). I am taking Creon for my pancreas dysfunction; I have controlled diabetes. I’ve been to a urogynecologist ( no definitive answer), neurosurgeon (nerves in spine are not damaged enough to cause). Is it some kind of neuropathy? Who should I see next? Thank you.

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Welcome @somanyquestions, From what I have read about 50% of people who have diabetes also develop neuropathy. Mayo Clinic has some information on diabetic neuropathy that might help with understanding the relationship - https://www.mayoclinic.org/diseases-conditions/diabetic-neuropathy/symptoms-causes/syc-20371580. A neurologist would be the specialist for diagnosing neuropathy.

Have you discussed the symptoms with your primary care doctor for a referral to a specialist/neurologist?

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Hi,
Find a good Neurologist and have them check your ANS, Autonomic nervous system. I have similar symptoms, T2 uncontrolled, so far and had B12 problems, although it is still low I'm just above the recommended low level. There are many types of neuropathy grouped under the title of Dysautonomia with varied symptoms.
Cheers

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I have intense itching of the feet from neuropathy help please

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Profile picture for kaydiver2 @kaydiver2

I have intense itching of the feet from neuropathy help please

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@kaydiver2
Hi! I use a Frankincense and Myrrh lotion that does not eliminate the itching entirely, but it does make it less maddening. The itching, pain, stabbing, cramping is definitely much worse when I don’t use it. There’s all types on Amazon.

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Profile picture for kyle083023 @kyle083023

@kaydiver2
Hi! I use a Frankincense and Myrrh lotion that does not eliminate the itching entirely, but it does make it less maddening. The itching, pain, stabbing, cramping is definitely much worse when I don’t use it. There’s all types on Amazon.

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@kyle083023
I used Wise Men Healing Balm with frankincense and myrhh to recover from nerve pain caused by shin shave biopsy surgery. It took a long time but I did heal from what was a painful situation. Sometimes holistic approaches can achieve desired results.

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Profile picture for John, Volunteer Mentor @johnbishop

Welcome @somanyquestions, From what I have read about 50% of people who have diabetes also develop neuropathy. Mayo Clinic has some information on diabetic neuropathy that might help with understanding the relationship - https://www.mayoclinic.org/diseases-conditions/diabetic-neuropathy/symptoms-causes/syc-20371580. A neurologist would be the specialist for diagnosing neuropathy.

Have you discussed the symptoms with your primary care doctor for a referral to a specialist/neurologist?

Jump to this post

@johnbishop Yes, a neurologist would be the specialist for diagnosing neuropathy. My neurologist then basically washed her hands of the problem. Sent me to pain management. Pain management doctors, or mine do not care to find the root cause. They deal only with the pain never looking at the root cause. When drugs don't work, other covered and non-covered "solutions" are tried. I have a spinal cord stimulator that does next to nothing when my pain flares up every single day. I've tried many devices, chiropractors, 2 different acupuncturists, piriformis surgery, PRP, Stem cell therapy and a host of other "solutions." Over the last 5 years I've had covid twice and 2 viruses. Each produced a fever. During the fever periods my neuropathy symptoms disappeared throughout my body. You would think Mayo clinic or Cleveland clinic would be interested in this. Nobody cared!!!! I just hate dealing with the medical profession. They seem to be just devoid of caring as the internet fake remedies. The combination of a knowledgeable and caring medical person is very rare these days. They can all go to XXXX.

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Were you told that alcohol stops B12 absorbtion.

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I just read your story - my body felt like a pin cushion all over and numbness and went to ER. They said lack of B12 as I am not a diabetic. B12 was ok so then they diagnosed me as sensory idiopathic neuropathy (of unknown cause). My dr prescribed the lowest dose of Lyrica - was awful - so fatigued that I could not walk to the car. I tried acupuncture but not sure if it helped. But THEN I got desperate and joined this Mayo Clinic Connect website and found out that alpha lipoic acid with vitamin B complex helped 90% better. I told my acupuncturist about it and she says she prescribes that for all her diabetic patients but I wasn't diabetic but she NEVER mentioned it. I was mad at her - she feels acupuncture helps some (temporary maybe) - $50 every visit. She did say don't worry about having too much B as your body pees out what it doesn't need. The nature store owner says he takes it too and it works. He only had one bottle left Source Naturals 600 mg taken better on an empty stomach if you don't have too much acid and with my vitamin B complex together. Anyway, you will be a happy person I promise you - it won't hurt you and is safe to take with other medications.

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Profile picture for gnocchi @gnocchi

I just read your story - my body felt like a pin cushion all over and numbness and went to ER. They said lack of B12 as I am not a diabetic. B12 was ok so then they diagnosed me as sensory idiopathic neuropathy (of unknown cause). My dr prescribed the lowest dose of Lyrica - was awful - so fatigued that I could not walk to the car. I tried acupuncture but not sure if it helped. But THEN I got desperate and joined this Mayo Clinic Connect website and found out that alpha lipoic acid with vitamin B complex helped 90% better. I told my acupuncturist about it and she says she prescribes that for all her diabetic patients but I wasn't diabetic but she NEVER mentioned it. I was mad at her - she feels acupuncture helps some (temporary maybe) - $50 every visit. She did say don't worry about having too much B as your body pees out what it doesn't need. The nature store owner says he takes it too and it works. He only had one bottle left Source Naturals 600 mg taken better on an empty stomach if you don't have too much acid and with my vitamin B complex together. Anyway, you will be a happy person I promise you - it won't hurt you and is safe to take with other medications.

Jump to this post

@gnocchi Alpha Lipoic Acid seems to help

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