Neuropathy?
My feet feel like they have socks on, I don’t; my genitals feel prickly, burn; I am a little incontinent; my scalp itches always, I have very low vitamin B (had B-12 injection, taking sublingual oral pill). I am taking Creon for my pancreas dysfunction; I have controlled diabetes. I’ve been to a urogynecologist ( no definitive answer), neurosurgeon (nerves in spine are not damaged enough to cause). Is it some kind of neuropathy? Who should I see next? Thank you.
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@gnocchi
I received the exact same diagnosis after 14 mths. Now waiting on a 2nd opinion - neurologist and she is also a DO. We should connect if you want. I do ALA, B multi, tumeric and stopped statins 2 months ago. . It has pivoted and is much less pivoted since then and is much better. I also had my split AC deep cleaned. He found a remarkable amount of black mold. unfortunately I did not isolate. My 1st neurologist chose IVIG perfusion. Scheduled out for first treatment on Sept 28. One week 25g /day. Still debating. Hoping the 2nd opinion in play prior.
Eeeeeck! Infrared matt vibration plates actually make it flare more. Swimming & weights & meditation BEST! Take care of you and hope you find some relief soon. Hang in there!
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3 Reactions@anargyrosm I would like to try Alpha Lipoic Acid but I have a few question for you:
1 did you ask your doctor about take it?
2 what supplements brand are you using?
3 what dosage per day?
4 any side effects?
Thank you very much
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3 Reactions@julkun try taking Methylcobalim. That's B12. And stop alcohol.. I'm am ,84 with no arthritis or joint or muscle pain anywhere.
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3 ReactionsA B12 injection is short term. Eat more B12 rich food like lambs fry and or mussels. Drink much less alcohol. Or take Methylcobalim. That's B12.
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3 Reactions@jamessaxo I can't stop Alcohol because I never started. I don't drink at all, never have. And I've taken B12.
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3 Reactions@julkun, Sorry julkun. I just guessed you may have drunk because most people with neuropathy are or have been drinkers. The alcohol numbs the billions of tiny villiing our intestine stopping absorbtion.
I also have neuropathy, but am not a drinker at all.
@jamessaxo No need to apologize. I wonder if drinkers stop, does the neuropathy go away. Drinking is bad on so many levels.
@pmdel Could you imagine how much worse we'd be if we did drink alcohol? Hope you find the answer to this painful disease. Get well!!!
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1 Reaction@corneliagd MD was informed, neither recommended nor not recommended it. 2. one CVS 600 mg. often if you buy one, the second bottle is 1/2 off. No side effects that I'm aware of. Seems to help a friend too. I also do twice a week Sanexas treatments which are covered by Medicare. Best wishes, G