@reneemc@blm1007blm1007 I too get the mucus in the throat after eating. I have had a full gerd workup and all tests negative for gerd, so, at least in my case, that doesn’t seem to be it. The only time I really cough is while eating or after eating, which is why I pushed for a gerd workup. I return to GI doctor in a couple weeks to discuss all the testing and next steps, but he has been very uninterested in the problem, and unmotivated to address. There seems to be this attitude that since I have BE, it’s natural that I cough. But I only really cough when I eat (or right after) and why would that be if the cough is BE related? Admittedly the cough really borders on throat clearing, but even more to my point. Though I do know many here have that throat clearing sensation so it’s confusing to me since mine is specifically related to meal times.
I mentioned in another thread, somewhere, that my local GI doctor diagnosed me with Acid Reflux...
With not having any symptoms for GERD/ACID REFLUX and after I read about taking PPI's my decision was not to take the PPI's. Besides, the GI doctors NP, that he sends his patients to after the test for follow-up , said to my question of the degree of it showing GERD, said my report was the best she had ever seen with it being a 9, with 9 =good.
I agreed to a full GI testing, again, at NJH and was told, after the GI testing, that I had a small hiatal hernia, no signs of acid reflux. A motility test was also done and that indicated a problem of moving food and other substances through the GI tract. I again was told to take a medicine for that but stubborn me decided not to after reading more about the possibility of what the side affects could be. Throat clearing is a possible side affect of a hiatal hernia, as mentioned in my readings of a hiatal hernia.
After 80 years of not having to take any type of medication, it is difficult getting me to come round about medications. I know that may truly have to change but so far so good overall.
So, if they could truly tell where the substance is coming from, from what body organ is it coming up from to my throat and further with my feeling well, swallowing o.k. etc. and managing, I will just do my BE mucus clearance routine and see if that, with time, will help the after eating problem to subside or fully stop.
It took me a while to understand all that we have to do for our BE, Bronchiectasis, and therefore it has taken a while for me to find my way to a good routine with postural drainage added in, so I hope in time it will change the after eating problem.
For all I know with the GI doctor diagnosing the hiatal hernia and with doing the BE routine it may be causing pressure on the hernia to make it worse. So I'm in some sort of circle possibly.!
Hope all information you have researched and have read here on Mayo will help fill your tablet (old style or new style 😂) with questions that come to mind that you can get answers to while at NJH.
Barbara
Coughing during eating can sometimes be a sign of oral dysphagia, but not always, of course. I was diagnosed with dysphagia a few months ago. Eating triggering coughing and being unable to properly break down foods I used to easily eat and swallow, such as raw veggies, are my main symptoms. I also have lots of throat mucus, but it's not only at mealtime. Best of luck to you.
Coughing during eating can sometimes be a sign of oral dysphagia, but not always, of course. I was diagnosed with dysphagia a few months ago. Eating triggering coughing and being unable to properly break down foods I used to easily eat and swallow, such as raw veggies, are my main symptoms. I also have lots of throat mucus, but it's not only at mealtime. Best of luck to you.
@wolfplanetzero yes, I was given a swallow test as part of the gerd workup, and that too was normal. I read a comment recently by Linda I think that her swallow test was also normal but she went to speech therapy to improve swallowing technique which I am going to push for myself. Something is not quite right and of course I am worried about aspiration.
@wolfplanetzero yes, I was given a swallow test as part of the gerd workup, and that too was normal. I read a comment recently by Linda I think that her swallow test was also normal but she went to speech therapy to improve swallowing technique which I am going to push for myself. Something is not quite right and of course I am worried about aspiration.
Sometimes it is not GERD but a vocal cord or trachea dysfunction (it seems I am lucky to only have one of them.) These can be tested for by the ENT or a speech therapist.
@wolfplanetzero yes, I was given a swallow test as part of the gerd workup, and that too was normal. I read a comment recently by Linda I think that her swallow test was also normal but she went to speech therapy to improve swallowing technique which I am going to push for myself. Something is not quite right and of course I am worried about aspiration.
@reneemc@blm1007blm1007 I too get the mucus in the throat after eating. I have had a full gerd workup and all tests negative for gerd, so, at least in my case, that doesn’t seem to be it. The only time I really cough is while eating or after eating, which is why I pushed for a gerd workup. I return to GI doctor in a couple weeks to discuss all the testing and next steps, but he has been very uninterested in the problem, and unmotivated to address. There seems to be this attitude that since I have BE, it’s natural that I cough. But I only really cough when I eat (or right after) and why would that be if the cough is BE related? Admittedly the cough really borders on throat clearing, but even more to my point. Though I do know many here have that throat clearing sensation so it’s confusing to me since mine is specifically related to meal times.
@bayarea58 have you had the Bravo 48 or 96 hr test? I had one recently and the graphs definately showed that I reflux about 2 hours after eating and this mostly coincided with when I would cough or clear my throat. Very informative. At this time I'm not sure if all my coughing is because of reflux or BE. Not yet officially diagnosed with BE but it has shown up on a recent CT scan. Waiting to see a Pulmanologist.
To @lenorj and everyone else on this discussion, I don't usually do this, but I am going to copy a post I made on another discussion this morning, because I feel like it is a topic we need to consider.
I am seeing and hearing, on Connect, other forums, and in my life, a tendency for docs to immediately jump to the Big 3 based on limited testing and consideration. In one case, with a friend, after a single positive culture and a so-so CT scan, without other clinical or symptomatic evidence to support it, the ID doc was going to do start of all 3 antibiotics at once, taken daily, with no scheduled follow-up and minimal patient education. This person has other health issues that make them an unlikely candidate to be able to tolerate the drugs at all.
Here is what I posted
Sue, Volunteer Mentor | @sueinmn | 2 minutes ago
In reply to @kathyhg "I’m probably repeating what some others have said but I had a couple of thoughts about..." + (show)
You are so right. I have two people in my "inner circle" right now who are positive for MAC and not receiving any treatment. One shows minimal infection on CT, is not a candidate for the meds and has begun airway clearance. The other, not sure whether it is a "true" positive due to difficulty with the samples, is totally asymptomatic, will retest in May and probably have a CT.
My concern at this point is whether doctors not full familiar with NTM/MAC treatment protocols are prescribing medication too soon based on single sputum cultures, not waiting to get 2 positives and trying other avenues.
Early research into NTM/MAC revealed that as many as 50% of people clear the infection spontaneously (does that mean they had a false positive, or a good immune system???)
So to everyone who is concerned that "this infection does not get enough attention" - there could be a downside. If docs are encouraged to treat with antibiotics rather than refer positive cases to the experts, we could go from not enough treatment to the wrong treatment.
I am happy to see newly diagnosed people come to Mayo Connect and educate themselves so they make the best possible decision for their situation.
Connect
Connect
Like
Helpful
Hug
I mentioned in another thread, somewhere, that my local GI doctor diagnosed me with Acid Reflux...
With not having any symptoms for GERD/ACID REFLUX and after I read about taking PPI's my decision was not to take the PPI's. Besides, the GI doctors NP, that he sends his patients to after the test for follow-up , said to my question of the degree of it showing GERD, said my report was the best she had ever seen with it being a 9, with 9 =good.
I agreed to a full GI testing, again, at NJH and was told, after the GI testing, that I had a small hiatal hernia, no signs of acid reflux. A motility test was also done and that indicated a problem of moving food and other substances through the GI tract. I again was told to take a medicine for that but stubborn me decided not to after reading more about the possibility of what the side affects could be. Throat clearing is a possible side affect of a hiatal hernia, as mentioned in my readings of a hiatal hernia.
After 80 years of not having to take any type of medication, it is difficult getting me to come round about medications. I know that may truly have to change but so far so good overall.
So, if they could truly tell where the substance is coming from, from what body organ is it coming up from to my throat and further with my feeling well, swallowing o.k. etc. and managing, I will just do my BE mucus clearance routine and see if that, with time, will help the after eating problem to subside or fully stop.
It took me a while to understand all that we have to do for our BE, Bronchiectasis, and therefore it has taken a while for me to find my way to a good routine with postural drainage added in, so I hope in time it will change the after eating problem.
For all I know with the GI doctor diagnosing the hiatal hernia and with doing the BE routine it may be causing pressure on the hernia to make it worse. So I'm in some sort of circle possibly.!
Hope all information you have researched and have read here on Mayo will help fill your tablet (old style or new style 😂) with questions that come to mind that you can get answers to while at NJH.
Barbara
-
Like -
Helpful -
Hug
1 ReactionCoughing during eating can sometimes be a sign of oral dysphagia, but not always, of course. I was diagnosed with dysphagia a few months ago. Eating triggering coughing and being unable to properly break down foods I used to easily eat and swallow, such as raw veggies, are my main symptoms. I also have lots of throat mucus, but it's not only at mealtime. Best of luck to you.
-
Like -
Helpful -
Hug
2 Reactions@wolfplanetzero yes, I was given a swallow test as part of the gerd workup, and that too was normal. I read a comment recently by Linda I think that her swallow test was also normal but she went to speech therapy to improve swallowing technique which I am going to push for myself. Something is not quite right and of course I am worried about aspiration.
-
Like -
Helpful -
Hug
1 ReactionSometimes it is not GERD but a vocal cord or trachea dysfunction (it seems I am lucky to only have one of them.) These can be tested for by the ENT or a speech therapist.
-
Like -
Helpful -
Hug
2 ReactionsSounds like an excellent practice plan. Improving swallowing now could pay dividends later on.
@bayarea58 have you had the Bravo 48 or 96 hr test? I had one recently and the graphs definately showed that I reflux about 2 hours after eating and this mostly coincided with when I would cough or clear my throat. Very informative. At this time I'm not sure if all my coughing is because of reflux or BE. Not yet officially diagnosed with BE but it has shown up on a recent CT scan. Waiting to see a Pulmanologist.
To @lenorj and everyone else on this discussion, I don't usually do this, but I am going to copy a post I made on another discussion this morning, because I feel like it is a topic we need to consider.
I am seeing and hearing, on Connect, other forums, and in my life, a tendency for docs to immediately jump to the Big 3 based on limited testing and consideration. In one case, with a friend, after a single positive culture and a so-so CT scan, without other clinical or symptomatic evidence to support it, the ID doc was going to do start of all 3 antibiotics at once, taken daily, with no scheduled follow-up and minimal patient education. This person has other health issues that make them an unlikely candidate to be able to tolerate the drugs at all.
Here is what I posted
Sue, Volunteer Mentor | @sueinmn | 2 minutes ago
In reply to @kathyhg "I’m probably repeating what some others have said but I had a couple of thoughts about..." + (show)
You are so right. I have two people in my "inner circle" right now who are positive for MAC and not receiving any treatment. One shows minimal infection on CT, is not a candidate for the meds and has begun airway clearance. The other, not sure whether it is a "true" positive due to difficulty with the samples, is totally asymptomatic, will retest in May and probably have a CT.
My concern at this point is whether doctors not full familiar with NTM/MAC treatment protocols are prescribing medication too soon based on single sputum cultures, not waiting to get 2 positives and trying other avenues.
Early research into NTM/MAC revealed that as many as 50% of people clear the infection spontaneously (does that mean they had a false positive, or a good immune system???)
So to everyone who is concerned that "this infection does not get enough attention" - there could be a downside. If docs are encouraged to treat with antibiotics rather than refer positive cases to the experts, we could go from not enough treatment to the wrong treatment.
I am happy to see newly diagnosed people come to Mayo Connect and educate themselves so they make the best possible decision for their situation.
What do you think?
-
Like -
Helpful -
Hug
5 Reactions