1. < Autoimmune Diseases

Oral Lichen Planus

Posted by diana70 @diana70, Dec 24, 2024

I have been diagnosed with oral lichen planus for over 12 years. Originally it was mild and able to control with Duke’s Mouthwash. In last 5 months have had two major flareups with considerable pain. My condition was managed by my general dentist. I now feel I need someone who specializes in OLP, but have had no luck finding anyone. I live in the Columbia, MD area which is near Baltimore. Does anyone know an OLP specialist in my area?

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rashida | @rashida | Mar 10 5:59am
In reply to @lizralpol "I am struggling with eating anything a little sharp or crunchy. Nuts definitely out, lettuce, coleslaw..." + (show)
@lizralpol

I am struggling with eating anything a little sharp or crunchy. Nuts definitely out, lettuce, coleslaw scrapes gums with each chew. I just hope it will ease up.

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@lizralpol that happens with me too. Just have to avoid those foods till the mouth eases up. It does - in time and with the right medication which in my case is the Lyderm gel.

When I have a flare my gums and inner cheeks feel like I have hundreds of paper cuts! Eating anything sharp, crunchy or spicy is torture.

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bestoflife | @bestoflife | Mar 26 10:23pm

I am wondering if anyone else has swollen gums with the other symptoms?

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moylandavis | @moylandavis | Mar 27 11:01am

This is a post I wrote a few months ago:
I found that my toothpaste (design for sensitive gums) that had a whitening feature might be a source of irritation. I switched to a brand called Happy Tooth and have not has a flare in 3 months…I also avoid acidic foods and anything spicy…
Now it has been over 6 months with out a flare! I buy Happy Tooth on AMAZON...I ate super spicy food recently and my gums were OK but I won't chance that again...my stomach was very unhappy!
As far as other symptoms, I have a few other AutoImmune issues and Mast Cell Activation Syndrome, which is a pain to get under control.

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1 reply
rashida | @rashida | Mar 28 9:48pm
In reply to @moylandavis "This is a post I wrote a few months ago: I found that my toothpaste (design..." + (show)
@moylandavis

This is a post I wrote a few months ago:
I found that my toothpaste (design for sensitive gums) that had a whitening feature might be a source of irritation. I switched to a brand called Happy Tooth and have not has a flare in 3 months…I also avoid acidic foods and anything spicy…
Now it has been over 6 months with out a flare! I buy Happy Tooth on AMAZON...I ate super spicy food recently and my gums were OK but I won't chance that again...my stomach was very unhappy!
As far as other symptoms, I have a few other AutoImmune issues and Mast Cell Activation Syndrome, which is a pain to get under control.

Jump to this post

@moylandavis yes, I find toothpaste with whitening agent makes my lichen planus flare up, too.

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cgrasse54 | @cgrasse54 | Apr 3 8:37pm
In reply to @rashida "Ask for a referral to an oral pathologist. That’s who I saw, and he prescribed Lyderm..." + (show)
@rashida

Ask for a referral to an oral pathologist. That’s who I saw, and he prescribed Lyderm gel. Should not be used for longer than 7 days, but my mouth took about ten days to clear. Now I use the gel only when I have a flare up.

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How did you apply the gel?

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1 reply
cgrasse54 | @cgrasse54 | Apr 3 8:42pm

Have any of you used FLUOROURACIL for oral lichen planus? Was it successful in relieving pain and inflammation?

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rashida | @rashida | Apr 4 12:43am
In reply to @cgrasse54 "How did you apply the gel?" + (show)
@cgrasse54

How did you apply the gel?

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@cgrasse54 you can put some gel on your finger tips and rub the affected areas, or put gel on a Qtip and apply to affected areas too. I prefer using g Qtip.

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dianne47 | @dianne47 | Apr 4 8:21am

Years ago when our children had any mouth issues i.e. Thrash/Thrush, ulcers, etc., I would apply Gentian Violet with a qtip and the ulcers and/or rashes would be gone within 24 hours. The pediatricians would just 'scratch their head' ... If I was dealing with OLP now, I would certainly try it. The purple color in your mouth will go away, too, in a few hours.

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