1. < Autoimmune Diseases

SOJGREN'S, SMALL FIBER NEUROPOTHY

Posted by penn @penn, Mar 7 2:45pm

WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND HAD TO HELP ME????? IT BECAME SO BAD THAT THE NURSES HAD TO HELP ME TO THE BATHROOM, HELPED ME SIT DOWN??? IT WAS VERY BAD! NURSES SUGGEST I NEED TO SEE MY RHEUMATOLOGIST AS SOON AS POSSIBLE, THEY SUGGESTED IT WAS THE SOJGREN'S SYNDROME. WILL SEE DR. IN A FEW DAYS FROM NOW! ANYONE EVER HAD THE SAMY SYMPTOMS??

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

carlybull1 | @carlybull1 | Mar 7 5:10pm

All of my Dr's tell me all of my symptoms sound like Sjogren's.
ANA always comes back elevated along with symptoms, but I am told my ANA isn't high enough.

Suggestions?

REPLY
2 replies
57phil | @57phil | Mar 7 10:24pm

How would they diagnose you just from the way you got out of your car? And problem with walking

REPLY
penn | @penn | 3 days ago
In reply to @carlybull1 "All of my Dr's tell me all of my symptoms sound like Sjogren's. ANA always comes..." + (show)
@carlybull1

All of my Dr's tell me all of my symptoms sound like Sjogren's.
ANA always comes back elevated along with symptoms, but I am told my ANA isn't high enough.

Suggestions?

Jump to this post

I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning of skin!! That's getting worse. I hope you are doing well!!!

REPLY
1 reply
pomcrzymimi | @pomcrzymimi | 2 days ago
In reply to @carlybull1 "All of my Dr's tell me all of my symptoms sound like Sjogren's. ANA always comes..." + (show)
@carlybull1

All of my Dr's tell me all of my symptoms sound like Sjogren's.
ANA always comes back elevated along with symptoms, but I am told my ANA isn't high enough.

Suggestions?

Jump to this post

He has to test you for ssa and ssb markers ask for that

REPLY
suetex | @suetex | 1 day ago

Sjogren's can give you small fiber neuropathy (with or without sensory symptoms) which can lead to large fiber neuropathy. They are part of your autonomic nervous system. The large fibers tell your feet where they are in relation to everything else. Very easy to see, if you know what to look for. Been there, got the t-shirt.

REPLY
artemis1886 | @artemis1886 | 1 day ago

I have Sjogrens, SFN, Hashmotos, Ehlners Danlos, connective tissue disease, lupus, severe axonal sensorimotor peripheral polyneuropathy, dysautonomia along with cardiac autonomic neuropathy. I have not had problems walking. I don’t have any feeling from my knees down or elbows down to my hands.. My problem with walking deals with four left hip replacements actebulum fracture and ORIF.

REPLY
penn | @penn | 18 hours ago
In reply to @penn "I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning..." + (show)
@penn

I never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning of skin!! That's getting worse. I hope you are doing well!!!

Jump to this post

I have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and tailbone area, pressure from that hurts badly nothing helps! I have a wonderful, caring Pain Management Dr. I have a Pain Pump that's usually helps but never with kind of pain!!!!

REPLY
1 reply
penn | @penn | 7 hours ago
In reply to @penn "I have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and..." + (show)
@penn

I have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and tailbone area, pressure from that hurts badly nothing helps! I have a wonderful, caring Pain Management Dr. I have a Pain Pump that's usually helps but never with kind of pain!!!!

Jump to this post

WHO IS THIS?

REPLY
Please sign in or register to post a reply.