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Sjogren's and small fiber neuropathy: Seeing a rheumatologist
WHEN I GOT OUT OF THE CAR TO GO INTO THE HOSPITAL FOR A PROCEDURE I COULD HARDLY WALK ALL OF A SUDDEN?? MY HUSBAND HAD TO HELP ME????? IT BECAME SO BAD THAT THE NURSES HAD TO HELP ME TO THE BATHROOM, HELPED ME SIT DOWN??? IT WAS VERY BAD! NURSES SUGGEST I NEED TO SEE MY RHEUMATOLOGIST AS SOON AS POSSIBLE, THEY SUGGESTED IT WAS THE SOJGREN'S SYNDROME. WILL SEE DR. IN A FEW DAYS FROM NOW! ANYONE EVER HAD THE SAMY SYMPTOMS??
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All of my Dr's tell me all of my symptoms sound like Sjogren's.
ANA always comes back elevated along with symptoms, but I am told my ANA isn't high enough.
Suggestions?
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3 ReactionsHow would they diagnose you just from the way you got out of your car? And problem with walking
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2 ReactionsI never realized the damage to the body SOJGRENS SYNDROME!!!! and pain!!! Small Fiber Neuropathy burning of skin!! That's getting worse. I hope you are doing well!!!
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4 ReactionsThank you...
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3 ReactionsHe has to test you for ssa and ssb markers ask for that
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1 ReactionSjogren's can give you small fiber neuropathy (with or without sensory symptoms) which can lead to large fiber neuropathy. They are part of your autonomic nervous system. The large fibers tell your feet where they are in relation to everything else. Very easy to see, if you know what to look for. Been there, got the t-shirt.
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3 ReactionsI have Sjogrens, SFN, Hashmotos, Ehlners Danlos, connective tissue disease, lupus, severe axonal sensorimotor peripheral polyneuropathy, dysautonomia along with cardiac autonomic neuropathy. I have not had problems walking. I don’t have any feeling from my knees down or elbows down to my hands.. My problem with walking deals with four left hip replacements actebulum fracture and ORIF.
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3 ReactionsI have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and tailbone area, pressure from that hurts badly nothing helps! I have a wonderful, caring Pain Management Dr. I have a Pain Pump that's usually helps but never with kind of pain!!!!
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3 ReactionsLiving a life with constant pain, DIFFICULTY moving bowels hurts indy closer spine and legs also. Live like everyday of this LIFE!!!
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2 ReactionsWhat is SSA??
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