Why are my symptoms returning?

Posted by klehker @klehker, 4 days ago

I've had Long Covid since fall 2023: mainly sleep disruption, extreme fatigue, palpitations, aches, chills, tingling, brain fog, abdominal distress. I have gradually but steadily improved except for a period after another Covid bout. Most of my symptoms have mostly resolved, except lingering fatigue and weakness. About 2 weeks ago, ALL of my symptoms returned. It's very disconcerting, and I'm trying to figure out why. I thought I'd simply been too active, but that usually just wears me out, and I really wasn't that active. Maybe I had Covid again and didn't know it? I had another Covid vaccination the week before my symptoms resumed, hate to think that could be causing it, never had a problem with vaccines before. Anybody else experiencing this? Any ideas? Thanks.

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I've had LC since 12/23 - mine has been up and down. I will gradually feel better for a bit then it returns. Every time I think its finally going away it comes back.

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There is a theory that the COVID vaccine's introduction of harmless components of the COVID virus causes Long COVID folk to flare. It is like our immune system way over reacts to any component of that virus.

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I know this is not very helpful in some ways, but I think with long covid it is not unusual for people to get better and then get worse for no apparent reasons. I have had that, and my doctors at the Long Covid/ME/CFS clinic at Stanford say no way to know the reasons.

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Have you read any research articles on the lipid nanoparticles in covid vaccines or spike protiens? Try Biovirx BMJ. This is not a conspiracy theory nor do I advocate not doing what health care providers say. Have you looked at VAERS? Vaccine adverse events reporting system?

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@vostie

There is a theory that the COVID vaccine's introduction of harmless components of the COVID virus causes Long COVID folk to flare. It is like our immune system way over reacts to any component of that virus.

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Interesting. Can you direct me to any resources on this theory? I'd be interested in reading more about it. Also, my immune system is medically suppressed due to a kidney transplant, so I'm complicated lol....

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@carlosmayo

I know this is not very helpful in some ways, but I think with long covid it is not unusual for people to get better and then get worse for no apparent reasons. I have had that, and my doctors at the Long Covid/ME/CFS clinic at Stanford say no way to know the reasons.

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This actually IS helpful. Good to know not to waste my time trying to figure out reasons etc. Thanks.

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@klehker

Interesting. Can you direct me to any resources on this theory? I'd be interested in reading more about it. Also, my immune system is medically suppressed due to a kidney transplant, so I'm complicated lol....

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Here is a quote from just one of the studies that have been performed:

"A recent study suggested that virus-mimicking anti-idiotype antibodies that are present after infection or after vaccination may potentially explain some of the long-COVD symptoms [21]. Therefore, it is plausible to hypothesize that vaccines may prolong the existing symptoms of long COVID by stimulating the immune response. A recent report even suggested that vaccines may rarely cause long-COVID-like symptoms (without a history of infection)"
https://pmc.ncbi.nlm.nih.gov/articles/PMC10849259/#:~:text=Conclusion-,In%20people%20who%20have%20already%20contracted%20COVID%2D19%20and%20now,year%20after%20the%20initial%20infection.

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I had the same experience with the Covid vaccine and know realize that it is related to autoimmune/ arthritis.
From the National Library of Medicine:
"Flare up or new-onset Inflammatory arthritis is a rare reported side effect of COVID-19 vaccination. The majority of cases occur two to seven days after receiving the vaccine, but they can occur later. In our patient, it occurred 10 days after vaccination. In the majority of cases, symptoms resolve within a week, but they may last longer than three weeks in a small minority. "
https://pmc.ncbi.nlm.nih.gov/articles/PMC10082647/

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@vostie

Here is a quote from just one of the studies that have been performed:

"A recent study suggested that virus-mimicking anti-idiotype antibodies that are present after infection or after vaccination may potentially explain some of the long-COVD symptoms [21]. Therefore, it is plausible to hypothesize that vaccines may prolong the existing symptoms of long COVID by stimulating the immune response. A recent report even suggested that vaccines may rarely cause long-COVID-like symptoms (without a history of infection)"
https://pmc.ncbi.nlm.nih.gov/articles/PMC10849259/#:~:text=Conclusion-,In%20people%20who%20have%20already%20contracted%20COVID%2D19%20and%20now,year%20after%20the%20initial%20infection.

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To vostie —

Thank you for the link to the article about possible negative effects of getting the Covid vaccinations after one already has LC.

Note, however, that the authors of the article encourage people to get recurringly vaccinated against Covid.

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Yes, I had the same experience- I had first covid infection 2022, followed by abdominal pains and severe constipation periods and could.not sleep and exhausted periods. All in Intervalls getting better and returning.-than got the vaccination and the whole problems became worse afterwards.
Now I have to deal with an immobile Cloum and abdominal pains and massiv sleep problems.
Info:
My exhaustion got better under the nicotine patch therapy .
The receptors where the spike blocks access in the cell, is the same where nicotine sits and nicotine opens thus blocking.
But this therapy has to be made with small doses of the nicotine patch and only 2 hours wearing it and adviced to do and wear it in cooperation with a doctor!

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