Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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@grovercleveland

ZINC OXIDE BLOCKS UVA UVB INFARED
Example: I have a propane radiant heater (propane 40 pound contained with heater screwed on top.
7 feet away my bare skin feels the heat from INFARED radiation. No hot air, just the INFARED waves. Bad for us.
The SUN emits all three. A fire emits INFARED.
Therefore the ZINC OXIDE protects the GROVERS from all three.
Most sun screens people uise normally DO NOT block the heat.
See: https://www.warrentondermatology.com/blog/infrared-rays-what-your-sunscreen-may-be-missing.

More: Heat Stuff:
I'm buying an all cotton mattress.
Those "memory foams" are murder on us guys. My back temperature is is 95F as I sit here typing, and I can tell that it wants to itch. . The memory foam puts it up a lot.

The following will cool my back;
I am working on a sleeping invention for us guys. Going to use air mattress as mattress top.
Pin holes in the air mattress at my trunk area only will leak little jets air at room temperature. A tiny low pressure compressor will run the air through a tiny "radiator" to cool it. You can put on the AC cold air output. This is getting better as I write. I do my best invention designs, when I explain them to people. A plus is ..... You can take it when you travel and use it on top of hotel bed. Whoa! Freedom!

I Love doing this stuff. Been an engineer (software, computer circuits) as a consultant for 35 years. Now retired 8 years and have a workshop with Lathe, Brake, Band Saw, Welders: Gas, Stick, Mig, and others. Dozens of AIR tools, hand tools. It would take days to move my shop to another property. So I gotta stay here. Started early (12 years old - build a gocart with lawnmower motor. At 16 put a 331 Chrysler Hemi in a 50 Ford.
So if you folks want chat about things other than Grovers, that would be fun.

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My back and stomach and ribcage BURN like someone lit my skin on a skillet and put it back on my body. Being near a hot oven or in the sun kills me and others can feel my skin is hot to the touch. The derms all say this is NOT from the Grover’s yet I only burn where the Grover’s rash is. Please tell me more about your hot skin.

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jfrbadger, 20 years! My goodness! I'm complaining of my two and a half years...
Torso and neck with redness, burning, itching and stinging (twice a day Eucerin Atopi Control cream); on my arms and thighs isolated red itchy spots come out every now and then, lasting less than a week (meanwhile other new ones get ready...). For the isolated spots I get some hours of relief only with Clobesol cream, using it only when I really can't stand.
I'm on my thirteenth week of Tralokinumab (two injections every fifteen days), and still fighting.
Good luck!

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Does having GD make it more likely I will get skin cancer?

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Just from my personal experience--- skin cancer came years before GD.

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@jtboston

Dermatology finally agreed that yes this does appear to be Grover’s and wants to try Dupixent has anyone had success with this?

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I have been on Dupixent for Grover’s Disease for a year and a half with complete relief. At the beginning of the second year I moved two once-a-month injections and still am experiencing complete relief. The only side effect I have had is dry, itchy eyes, which are treatable with Systane eye drops.

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@bjwilliams

I have been on Dupixent for Grover’s Disease for a year and a half with complete relief. At the beginning of the second year I moved two once-a-month injections and still am experiencing complete relief. The only side effect I have had is dry, itchy eyes, which are treatable with Systane eye drops.

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Good for you I ended up at the ER looking like this:

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@jtboston

Good for you I ended up at the ER looking like this:

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Oh, my goodness! This was a reaction to the Dupixent injection?

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Happened a few days after no clue but discontinued it for sure.

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@jtboston

Happened a few days after no clue but discontinued it for sure.

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I’m so sorry this happened to you. I’ve never seen this type of reaction reported.

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@impatient

I've struggled with Grover's for 2 years. It all seemed to start when I stayed at a very dirty airBnB. I liked to sleep with a pillow over my eyes, and when I woke in the morning, my eyebrows and eyelids itched like crazy, and things got worse from there. I developed rosacea on my face, and then the Grover's creeping steadily downward from there. I've read that demodex may be implicated in rosacea and Grover's. My doctor prescribed a host of medications and terminated some of them, usually with no discussion – dermatology practice seems chaotic in my city seems chaotic at best. Some meds were oil-based, and I've read that demodex feed on sebum, and my own experience was that oily creams and the like made the inflammation worse, so I've tended to just use the creams (although I think maybe petroleum-based oil is ok?) I've also read that part of the problem is that the skin reacts to the organisms' feces, and noticed that if I scrub itchy areas with a solution of witch hazel and alcohol, I get a beige-gray grime; and if any areas still itch after scrubbing and I go back over it, I get more grime off – in other words, the presence of the grime exacerbates the itching. This may just be because the skin is already irritated and is simply reacting to any kind of grime that may accumulate on it; but I've also started to wonder if there's a whole skin ecology involved; more about that below. Anyway, most of the meds I've tried haven't seemed to help much. The rash gets better and worse from time to time but has slowly and steadily spread from my shoulders down my chest, armpits, back, upper arms, and down to my wrists, in that order. Once an area's been colonized, the rash there never seems to go completely away. The initial sign of spreading is a fairly intense crawling feeling; then stinging as pink bumps pop out, then intense itching. I carefully resist scratching, or only scratch through clothing, but the bump seem easily inclined to turn into open sores and scab, although the scabs are small. My eyes are also itchier and blearier than before this all began; several times a day, I'll use a fingernail to gently scrape the crud from my eyelid edges. As for treatment, I've gradually developed a regimen that seems to help keep things bearable, although the itching woke me up in the middle of the night the other night; and if I neglect things, I'm quickly thrown back into torment. The regimen is: I scrub all areas with a solution of 2 parts witch hazel to one part 90% rubbing alcohol, trying to remove all grime; then a cortisone cream on particularly itchy areas; then slather on antibiotic cream – the latter really seems to help the healing, and this is one reason I wonder about the skin ecology – that if demodex are involved, maybe other kinds of bacteria also play a role, either in feeding them or simply in the inflammation. I do all that at least twice a day, morning and night, and it usually gives me at least 3 hours of relief from the itching; plus I also use Differin in certain areas to help things heal; and I also apply opthalmic ointment to my eyelid edges every night. And of course I wash my sheets, towels, and clothing two or three times more often than I used to, using tea tree oil in the wash and also in my shampoo and soap; and I only wear the softest cotton shirts, inside out since the seams feel torturously scratchy. If I do all this religiously, I can usually still function; but I estimate it's sucks up nearly 4 or 5 hours per day, and I still feel at least semi-tormented much of the time.

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If dermodex are in involved an ivermectin cream (prescription) would help called soolantra.

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