What helps with dry mouth with Sjogren's?
My 54 yr old son was just diagnosed with Sojourns disease
Extremely fatigued, very dry mouth, joints ache
Nothing help. Any suggestions?
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yes char8972 it's an oily drop so it seems to lubricate better for me
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3 ReactionsI can certainly relate to loss of taste and smell. It’s been almost 3 years for me now without it. It is a pretty dull life, not much to look forward to as far as food goes, then add that I have several food sensitivities along with no taste or smell. It’s a drag! Lost is 2 days into Covid in December of 2022. I’ve had 7 Stellate Ganglion Block injection, nothing so far…
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2 ReactionsI have the same problems. I take Plaquenil and Systane eye drops. At first I was treated for lupus and Sjorgens.
Now the diagnosis is connective tissue disorder and Fibromyalgia.
Symptoms vary. Deal with extreme fatigue.
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3 ReactionsI've had Sjogren's for 30 years and in 2023, I was diagnosed with Extranodal Marginal Zone Lymphoma on the base of my tongue. So yes, if you have Sjogren's, you are at an increased risk for developing lymphoma. I had radiation and am thankfully now in remission. I also have Interstitial Lung Disease which is also associated with Sjogren's. I am on Plaquenil and I use refresh eye drops and the Biotene mouth rinse which really helps my dry mouth at night.
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5 ReactionsThank you for sharing!🙂
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1 ReactionAny problems with loss of taste?
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1 ReactionThank you for your information, I really don’t know much about these diseases. I’ve been having pain on the bottom of my heel, my daughter is a PT and gave me exercises to do for that. She said plantar fasciitis but I haven’t seen a doctors about it.
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1 ReactionIf you don’t mind me asking….do you know what test determined Mixed connective tissue disease !
I was diagnosed with Systemic lupus and Sjögren’s over 30 years ago. Up until now I could use lubricating eye drops which don’t contain preservatives and a gel at bedtime. This last year he have been in so much pain with my dry eyes and nothing worked . I am using hylo forte eye drops every hour and Vitamin Pos eye ointment at bedtime as I am now waiting for the Red Cross to take my blood and make Autologous serum Eye drops that are all the good nutrients that can repair the cornea . I hope it works as I can’t enjoy my life with the constant pain and burning in my eyes. I have to flood them with single vial tears in the morning to get my eyes to open. This is a new treatment and suppose to work very well. I hope they work for me.
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1 ReactionAutologous serum Eye drops have worked great for me. They may see expensive at first, but considering how many vials you get, they end up being cheaper than the prescription drops.