What helps with dry mouth with Sjogren's?

I'm not sure. These questions should be discussed with your doctor. I do know two things: plaquanil greatly helped my dryness, and it rarely has severe side effects ( I've had NONE). Be careful about what you read on the internet: people love to post their horror stories, none of which are the results of controlled studies, and thus statistically not worth a pile of do-do. I can't promise you'll get the same results I have, but at least talk to your doctor about your concerns and get a reliable opinion to benefits vs risks of ANY Medication.

@lgreg I’m fighting with my insurance to get it approved . When I was deemed disabled and put on Medicaid I got it for free. because my. I couldn’t afford to live on SSI so I took an early out on my pension it put me over to get Medicaid so now I’m back to square one again fighting insurance. It is not cheap $850 for a 3 ml bottle if approved I will get it for free or $39 or I can pay $60 cash thru Miebo Or Bausch and Lomb has a program to get it for $79 plus a one time processing fee of $50.

Plaquenil usually does not help dryness. For me, it helped with fatigue. Did not help with joint pain. My rheumatologist said my experience was what was seen in clinical studies.

I have tried pilocarpine on two occasions. The side effects were unbearable, cold sweats to the point of shivering, then hot sweats that left me feeling clammy
Just to get saliva I use x-pur gums, x-pur pastilles, Thera breath dry mouth lozenges. Also pur mints. I use biotene dry mouth spray and biotene mouth gel. I chew sugarless gum and lifesavers.
Now I am starting to feel nauseous, not sure if it’s because of all the above.
Life is not as much fun, when you have loss of taste, so this has effected my mental status.
Can anyone relate or have and more helpful suggestions?

@lgreg Insurance finally approved the Miebo eye drops and with a discount card I will get them for $0 Definitely a Blessing for me

I have tried pilocarpine on two occasions. The side effects were unbearable, cold sweats to the point of shivering, then hot sweats that left me feeling clammy
Just to get saliva I use x-pur gums, x-pur pastilles, Thera breath dry mouth lozenges. Also pur mints. I use biotene dry mouth spray and biotene mouth gel. I chew sugarless gum and lifesavers.
Now I am starting to feel nauseous, not sure if it’s because of all the above.
Life is not as much fun, when you have loss of taste, so this has effected my mental status.
Can anyone relate or have and more helpful suggestions?

I was diagnosed with Sjorgens syndrome 14 yrs ago. I was also diagnosed with St4 NH Lymphoma 5 years ago. Thankfully I am blessed to be in remission for 3 yrs now. My son is a Dr. of Internal Medicine. He told me there is now a medical connection between Sjorgens and Lymphoma. Now, when diagnosed with Sjorgens he orders a cancer panel also. I am sharing this because for me to be St 4 I had Lymphoma for many years. Please talk to your Drs and have a cancer panel done if you have Sjorgens syndrome.❤️

I was diagnosed with Sjorgens syndrome 14 yrs ago. I was also diagnosed with St4 NH Lymphoma 5 years ago. Thankfully I am blessed to be in remission for 3 yrs now. My son is a Dr. of Internal Medicine. He told me there is now a medical connection between Sjorgens and Lymphoma. Now, when diagnosed with Sjorgens he orders a cancer panel also. I am sharing this because for me to be St 4 I had Lymphoma for many years. Please talk to your Drs and have a cancer panel done if you have Sjorgens syndrome.❤️

I have had Sjögren’s syndrome for at least 20 years. How did you know you had lymphoma? Did you have symptoms ??

Thank you for sharing, great information! I have always been concerned of lymphoma. What are your symptoms of lymphoma? How do you deal with dry mouth.
Have you had problems with taste
😊