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Ascending Aortic Aneurysm / My Terrifying Story
My Terrifying Story
My journey began with researching to find the best surgeon for my ascending aortic aneurysm surgery. The aneurysm had grown to 5 cm, and since I have Parkinson's disease, delaying surgery could have made my recovery much harder.
After careful consideration, I chose a highly skilled and successful surgeon in Orange County. My surgery was scheduled for December 3. The operation lasted about eight hours. The aneurysm in my ascending aorta was replaced with specific tubes, and thankfully, my bicuspid aortic valve didn’t need replacement, which reduced the surgery time by three hours. The surgeon told my family the operation was a success.
On December 5, it was time to remove my drainage tubes. A physician assistant came to my room and asked me to take deep breaths as she removed the tubes. The first two were painful but manageable. However, when she pulled out the third tube, the pain was unbearable.
I started tossing and turning, struggling to find a comfortable position. After open-heart surgery, you can't use your arms to lift yourself, and my Parkinson’s disease made movement even more difficult. I called the nurses repeatedly, explaining that the pain was excruciating. They assured me it was normal.
Suddenly, I noticed my stomach felt wet. When I lifted the sheet, I saw blood covering my stomach. Alarmed, I called the nurse again. Her assistant came, casually wiped the blood, and shockingly asked, “Are you still on your period?” I cried out, explaining that I was 61 years old, and the blood was coming from the surgical holes in my stomach.
As time passed, my breathing became shallow, and I felt severe pain in my upper left shoulder and back. Thankfully, my sister was with me. She ran to the nurses' station, yelling for help. A nurse finally came and, seeing my blue lips and difficulty breathing, called a "Code Blue."
My surgeon wasn’t available, but the on-call surgeon, an anesthesiologist, and other medical staff rushed to my room. A radiologist performed an echocardiogram and found blood filling the sac around my heart, preventing it from pumping. I was experiencing tamponade, a life threatening condition.
They quickly moved me back to the operating room. I was fully awake and aware of everything as they prepared for surgery. Unlike the first time, I hadn’t fasted, nor was I sedated before being taken into the operatin
About three hours later, I woke up in the recovery room with tubes in my stomach, gagging and vomiting. My family and friends watched from behind a window, relieved to see me alive.
The surgeon whispered, “You have a new birthday—December 5, 2024. You were reborn.” They told me I had been gone for a few seconds.
Reflecting on this terrifying experience, I focus on the positive: I survived. If I hadn’t been in the hospital when the tamponade occurred, I might not be here today. Life is fragile—a fine line between life and death.
I’m incredibly grateful for the quick action of the medical team that saved my life. Neil Armstrong, the astronaut who was the first person to walk on the moon, died from the same condition, tamponade. Instead of taking him back to the operating room, they took him for a CT scan for further evaluation, and he passed away.
Although my recovery is very slow & challenging after my chest being opened twice within two days; I guess I’m extremely lucky to still be here to share my story!
Thank you.
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Yours is quite an incredible story! A credit to your strength, resilience and perhaps an amazing stroke of good luck and timing. Enjoy the rest of your amazing life! Thank you for sharing.
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2 ReactionsI am 80 yrs old retired Pediatrician who was diagnosed at Jacksonville Mayo with an ascending aortic aneurysm measuring 4.5 cm in 2013. It was an accidental finding at the time. I have been followed every year until now 10 yrs later it measures 4.9cm. They are speaking of surgery. Is the enlargement over 10 yrs conducive toward surgery or at my age the surgical risks are grater than the slow growth observed? The measurements over the years have been all over the table, one year 4.7cm the year after 4.6cm depending who reads it or measures it on ECHO
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3 ReactionsThank you for sharing. Each story is fascinating, and there is wisdom to be shared in every one.
Personally, if you can go to Mayo in Jacksonville and have a consultation with Dr. Sabrina Phillips with a CT scan with contrast, it would help answer the question on size etc. She is a congenital specialist and will use a team approach to evaluate your results etc.
I will thanks
I am 69.5 years old with an aorta of 5.1 cm. No growth in the last 3 years. At 5.6 cm surgery is strongly recommended. Surgeons ad pushing to do it now while I am healthy. I share this because you are under 5 cm.
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1 ReactionI forgot, every six months they do an MRI with contrast. The measurement has been consistent across machine technicians. I too am weighing the risks of surgery.
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2 ReactionsI tried to get an appointment at Mayo in Jacksonville and they told me they are booked solid and to go somewhere else. I am devastated because I have been a patient there since 2010 and was diagnosed there with AAA. I live in Pensacola Florida 6 hrs drive from the clinic and have been driving there for many other things since my AAA diagnosis. The department of Cardiology here has been following me and because my aneurysm has gotten bigger they wanted me to go back. But since I haven’t been there in the last 3 yrs they qualify me as a new patient and won’t give me an appointment. They said to go to another center. I even had brain surgery there! I feel betrayed
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1 ReactionI am really sorry to hear that.
And I keep seeing ads from them soliciting new patients. I'm sorry you've had this experience. It's kind of scary really. I hope you find someplace that will take you and make you feel comfortable.